Is anyone suffering long term affects of peripheral neuropathy?
I finished chemotherapy on April the 1st, 2024. I was on oxaliplatin, and had the known side effects, especially; an increased sensitivity, especially to cold. Now, 9 months later, i'm having problems with my hands, tremors in hand and a cold sensation in my arms. I have been to the GP who has referred me to a specialist. I'm told there is quite a significant waiting list.
I was wondering if anyone else is having or had the same symptom's?
TIA. Maggie.
Hi maggie.
The answer is yes! The is a special bookmarked thread on it - try entering in PN or full words into this site's search. The search magnifying glass icon should be top left of page.
And i just checked my own bookmarks
community.macmillan.org.uk/.../managing-peripheral-neuropathy
My doctors opted to slowly work though the lsrge array of drugs on offer. The 'overview and management section' of this nhs page might be useful to you and your GP:
https://bnf.nice.org.uk/treatment-summaries/neuropathic-pain/
My GP is referring me to a neurologist, I think it's to rule our Parkinson's, etc.
Hi Maggie!
I've got peripheral neuropathy from having Oxilaplatin. When I was on the treatment, I got it in my fingers but since I finished treatment, I've got it in my feet!
It doesn't hurt but they are constantly tingling and when I'm out walking and it makes me feel like that I am skidding! I've been using a walking stick when I go out as I've got arthritis in my left knee and even with that, still struggle to cross the road and get on and off the bus!
Sorry I'm not being very helpful.
Hi there.
Sorry to hear about your arthritis, very painful.
Touch wood, I haven't got it in my feet, it's just my hands and fingers.
Did your GP refer you to a neurologist?
You are being very helpful, thank you.
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