I am on folfox chemotherapy and had read about icing from a site called Colontown. So I thought I'd give it a go. It's supposed to work on a similar vein to scalp cooling. Stopping the Oxaliplatin from getting to peripheral nerve endings, but don't quote me on that.
Met with some resistance from the chemotherapy nurses and spoke to the doctor. We came to the agreement that I would only do hands and not the mouth the first time. This was my 3rd round of chemo and I was already very sensitive to the cold.
It worked much better than expected. I could take stuff out of the fridge and freezer with no gloves on. Touching metal didn't hurt as much either. You know it's bad when you have to warm your knife and fork, before you use them!
So the following cycle I did my throat too, without asking anyone. I didn't have as many spasms and could eat cold stuff after 2 days. Drink still needed to be room temp but could have the odd sip of cold water.
Friday was my 5th cycle. Nurses are now asking me how it's going and showing an interest.
This is me getting a frozen joint of beef out, no pain!
I haven't iced my feet, they're usually cold anyway.
So that's my journey so far.
Hi Blondie,
This sounds really interesting and weirdly like it shouldn't work! How did you do it? Did you hold cold packs?
I had chemo earlier this year and there was a man that used to wear blue tight surgical type gloves and they were supposed to have the same effect.
Bren
You can get gloves and socks.
I just take some plastic ice blocks in a cool box. I also put ice cubes in a thermos flask, along with some ice pops, for my mouth.
Then I wrap the blocks in a teatowel, just to stop water dripping, and if my hands feel too cold I put a layer of teatowel in between my hand and the block.
I start this as soon as I go in or 30 minutes before chemo and while the flush is going through afterwards.
Hi Blondiebird
I have read of someone else doing that in America based on the cold cap ! Do you continually move it ? I know physios get concerned if an area is iced for too long as it can lead to some nasty complications .
Sounds as though you got it to work for you .
An interesting post for sure .
Court
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I do continually move my hands around, if it's too cold I put the teatowel in between or just take my hands off for a short time.
That’s brilliant .
I wish you every success .
Court
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