My icing journey.

Hi Blondie, 

This sounds really interesting and weirdly like it shouldn't work! How did you do it?  Did you hold cold packs? 

I had chemo earlier this year and there was a man that used to wear blue tight surgical type gloves and they were supposed to have the same effect.

Bren

You can get gloves and socks.

I just take some plastic ice blocks in a cool box. I also put ice cubes in a thermos flask, along with some ice pops, for my mouth. 

Then I wrap the blocks in a teatowel, just to stop water dripping, and if my hands feel too cold I put a layer of teatowel in between my hand and the block.

I start this as soon as I go in or 30 minutes before chemo and while the flush is going through afterwards. 

Hi Blondiebird 

I have read of someone else doing that in America based on the cold cap ! Do you continually move it ? I know physios get concerned if an area is iced for too long as it can lead to some nasty complications . 
Sounds as though you got it to work for you . 
An interesting post for sure .

Court 

I do continually move my hands around, if it's too cold I put the teatowel in between or just take my hands off for a short time.

That’s brilliant . 
I wish you every success .

Court 

Hi Blondiebird

This is so interesting because it’s kinda the opposite of what we’re told.  Can I ask if it just works for the cold touch or does it help with preventing neuropathy getting worse?  How are you now?  

I will be starting Folfox on Tuesday and already have peripheral neuropathy in my foot.  
 

Thanks

Lee

ps - did you lose hair?

It works for the cold touch. I do hands feet and throat, starting 15 minutes before chemo ending 15 minutes after chemo has finished. I can still eat and drink cold stuff and take stuffout of theidge and freezer straight away. I have my 9th cycle on Friday and feel OK. My hands and feet don't have much neuropathy but it affects my nose and tongue 

I haven't lost my hair but it has gone thinner by about 30-40%

Thanks so much for replying. I may give this a go, I’m desperate to avoid worsening the neuropathy and I can’t imagine going without cold drinks.  Hopefully that’ll be the worst of my problems.  
You sound like you’re doing well - long may that continue xx

I've just looked at Colontown - it looks very different to other community sites

This is so interesting! My hands are really suffering with neuropathy, 2 cycles into 4 of Capox. So basically , get your hands as cold as possible, just before the infusion and during it, if you can using ice blocks in a bag or teatowel? Same principle as cold hat?

That's it. I use ice blocks on hands and feet and small ice cubes, ice pops and frozen grapes for mouth.