I'm new here because I feel lost. My mum was diagnosed with Rectal Cancer In May of this year. It came as a huge shock for my mum, myself and her husband.
Her consultant had her In surgery quite quickly and performed a Loop Stoma. This obviously has been life changing In Itself but her consultant thought this the best solution to alleviate the Bowel backing up and more C Diff I fections.
She saw the consultant and he told her the plan and he said I have made a referral to the Oncologist and we will treat you with a course of Chemo & Radio and if everything goes to plan and we shrink It, I will remove It and then hopefully reverse the Stoma.
Mum attended the Oncology appt and was told that they couldn't offer her Chemo as something In her bloods she would be sensitive to and It would be too toxic. As there was no spread, the Oncologist said we will give you a round of Radiotherapy and I'm 85% sure this will shrink the tumour.
Mum had 5 weeks of Radio, 5 days a week and tolerated It well.
2 weeks ago she found a lump on her Cervix and the GP said he didn't think It was connected to the Rectal Cancer but It could be from the Radio but because they were not sure they contacted mums consultant and they brought her scans forward by a few weeks.
Mum had the scans and her appt was today with her Consultant.......
The biggest shock we had today Is that the Radio hasn't really worked and that a very small patch has appeared on her lung but only recently and whilst she's been having Radio.
I'm struggling because Mum has Just told me and doesn't want to discuss anything......
Her Consultant has said to Mum that they could of given her a different Chemo and so she asked the same question as I did......'Why did the Oncologist not give her the Chemo' ? The consultant replied, I don't know!!
The Oncologist has been written to and Its been requested that mum Is seen very soon. Her consultant has said he's not going to operate because he can't, It needs to be smaller but he said that we need to deal with this on your lung first and then I think you should go to Christies In Mcr for the Bowel Surgery.
I'm angry but I'm confused.......Surely my mum Is not the only person on this planet that could have adverse reactions to Chemo and they've not found alternative Chemo's to counteract this?
Mum doesn't want to know now.....Is not looking forward to seeing the Oncologist and I've said maybe she should consider a second opinion from another Oncologist and that she should definitely be pushing for a referral to Christies.
Can anyone provide any answers?
Thank you
No advice except to say it’s a bit similar to my dad, except he did not have the colostomy. He has a stent put in to hope to avoid obstruction but he has so much trouble passing his stools, is taking bowel medications and is constantly in the bathroom, miserable. They put a port in him at the end of an unrelated hospital stay only to return to oncology and have them say it was too toxic for him. He just did get 10 radiation treatments (palliative for him), will take a few weeks to see if it helped shrink the tumor. Has an oncology revisit for possible chemo pill to also help shrink it, and hope stools pass easier, but they keep hinting he isn’t strong enough. He is up and walking to bathroom throughout day and just recovered from multiple rib fractures and has good appetite so not sure why he can’t try the chemo pill. An oncologist yesterday asked his age (82) as that was a deciding factor who gets it or not. I’ve read often elderly tolerate chemo pill just fine, so it seems like age discrimination by the doctors.
Hi Ruby1971 I don’t know a lot about this but it’s called DPD deficiency so you could search for that in the search box and look for previous posts like the one below
www.cancerresearchuk.org/.../dpd-deficiency
Take care
Karen x
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