Mums on Codeine Stage 4 Bowel Cancer

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Long story short ...

Mums in a nursing home for other issues.. early this year she was diagnosed with Stage 4 bowel cancer with significant liver mets. Palliative care has been agreed, no chemo as Mum not strong enough to cope with it.

Last few weeks the fatigue has got a lot worse, she's not really up in her wheelchair until luchtime, then back in bed by 4pm. Appetite down a bit and the pain has increased. They have put her on Codeine now which I'm suprised at as her bowel movements weren't that regular and Codeine is renowned for causing consitpation. She's been double incontinent for about a year too. The last few days (since the 5th) she hasn't had a good bowel movement,  a small amount today as far as I'm aware, is all.

They are giving laxatives too alongside the Codeine.

The pain has improved which is good as she was having right shoulder pain, stomach and back.

Is Codeine routinely given to bowel cancer patients? I'm assuming they work up to the stronger meds gradually?

Looking for any advice and if others have similar situations?

Thanks in advance Blush

 

  • I don't know if it's routinely given but an opiod of some sort may be necessary to control the pain and keep her comfortable.  As far as I know, all opiods tend to cause constipation so I'm not sure that can be avoided.

  • Thanks Susan

    I'm sure your right. I just wondered if there was another option.?.Just worried that mum could get  a bowel blockage as this is a risk especially if she's constipated along with the cancer

  • Hi  

    Sorry to hear your mum is in pain and glad that it’s been attended to .

    The stronger morphine drugs do the same to the bowel in my mum’s experience so they do have a juggling act to balance out the laxatives. 
    My mum was on codeine based meds and we had to make sure she did not struggle with the toilet as she previously ruptured her varicies pressing . But with time and a bit experience she got there and was able to use dihydrocodeine along with a stool softener.

    Definitely be vigilant and keep advocating for her as it needs to be addressed if she is blocking with it .

    I wish you both well .

    Court 

    Helpline Number 0808 808 0000

  • As court said, it makes sense to be vigilant. It's a very difficult thing to balance and I would be sure to express concerns about a blockage to her treatment team so they can help. 

  • I was given codiene and laxatives to manage constipation so I think it’s the norm. The World Health Organisation have an analgesia ladder and paracetamol would be the first go to med then medication such as codiene would be added if paracetamol isn’t working alone. If the codiene doesn’t work then an opiate such as oramorph should be introduced so it’s kind of good they introduced codiene now rather than missing a step on the ladder so to speak. They just need to ensure she doesn’t get completely constipated. 

  •   yes that's what happened. She's was taking paracetamol but she was still having pain so they've added codeine now too. They're also giving laxatives. Bowel movements are occasionally every 3 days at most so it's helping with the laxatives. She had some pain yesterday but overall much more comfortable

    Thank you Blush 

  • The big problem I find with strong pain killers is that the effects on constipation are very inconsistent. What works one week might not work the next. Mine was so bad once I had a night in a &e. My latest trick is that if it is bad ie after a few days I drink five or six laxido sachets in one go. That shifts it. Sorry to be so graphic. Good luck to you and your mum. Best wishes.