Long story short ...
Mums in a nursing home for other issues.. early this year she was diagnosed with Stage 4 bowel cancer with significant liver mets. Palliative care has been agreed, no chemo as Mum not strong enough to cope with it.
Last few weeks the fatigue has got a lot worse, she's not really up in her wheelchair until luchtime, then back in bed by 4pm. Appetite down a bit and the pain has increased. They have put her on Codeine now which I'm suprised at as her bowel movements weren't that regular and Codeine is renowned for causing consitpation. She's been double incontinent for about a year too. The last few days (since the 5th) she hasn't had a good bowel movement, a small amount today as far as I'm aware, is all.
They are giving laxatives too alongside the Codeine.
The pain has improved which is good as she was having right shoulder pain, stomach and back.
Is Codeine routinely given to bowel cancer patients? I'm assuming they work up to the stronger meds gradually?
Looking for any advice and if others have similar situations?
Thanks in advance
Hi xena1
Sorry to hear your mum is in pain and glad that it’s been attended to .
The stronger morphine drugs do the same to the bowel in my mum’s experience so they do have a juggling act to balance out the laxatives.
My mum was on codeine based meds and we had to make sure she did not struggle with the toilet as she previously ruptured her varicies pressing . But with time and a bit experience she got there and was able to use dihydrocodeine along with a stool softener.
Definitely be vigilant and keep advocating for her as it needs to be addressed if she is blocking with it .
I wish you both well .
Court
Helpline Number 0808 808 0000
I was given codiene and laxatives to manage constipation so I think it’s the norm. The World Health Organisation have an analgesia ladder and paracetamol would be the first go to med then medication such as codiene would be added if paracetamol isn’t working alone. If the codiene doesn’t work then an opiate such as oramorph should be introduced so it’s kind of good they introduced codiene now rather than missing a step on the ladder so to speak. They just need to ensure she doesn’t get completely constipated.
Darkmoor77 yes that's what happened. She's was taking paracetamol but she was still having pain so they've added codeine now too. They're also giving laxatives. Bowel movements are occasionally every 3 days at most so it's helping with the laxatives. She had some pain yesterday but overall much more comfortable
Thank you
The big problem I find with strong pain killers is that the effects on constipation are very inconsistent. What works one week might not work the next. Mine was so bad once I had a night in a &e. My latest trick is that if it is bad ie after a few days I drink five or six laxido sachets in one go. That shifts it. Sorry to be so graphic. Good luck to you and your mum. Best wishes.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007