Chemo

Hi Rosie13 

I can't help with your question but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

While you're waiting for replies it would be great if you could put something about your son's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

If your son gives his CNS a call, they should be able to look at his treatment plan and tell him when his radiotherapy is due to start.

Thanks I have tried that think I have done it right 

Hi Rosie13 

From the boards it can be a couple of months . They allow the chemo to fully leave the body then rest a bit .

Take care ,

Court 

Thank you

Hi. Sorry to hear about that. Usually after 6 cycle, 3 weeks rest periods for recovery,  and they will do some blood test prior to the radio therapy. 

He has to take chemotherapy tablets as well as radiotherapy.for 5 weeks he has to go every week day.

Hi Rosie13 Yes that’s the standard treatment and it can be very effective at shrinking the tumour. Hopefully he’ll find the capecitabine tablets a lot more tolerable than his earlier chemo

Take care

Karen x

He's doing ok 3rd week of chemo nearly done. He has tingling feet and itchy legs but not too bad. My husband has to go with him for his treatment as the parking is bad sometimes he hasn't got parked before Simon has finished his treatment.

Sorry should say radiotherapy with chemo tablets 

Finished week 3 of radiotherapy and doing ok