Do people always get bad side effects with the first treatment of folfirinox?
No not necessarily. There’s no way of predicting which side effects or to what extent someone will be affected. He will be given anti sickness meds and anti diarrhoea meds but I’m afraid it’s a case of wait and see? Side effects can accumulate as each session progresses but the nurses will keep a close eye on him. It’s helpful to keep a bit of a diary as a reminder of any side effects and also he might find that the first couple of days after the pump are the worse then any side effects improve towards the end of the cycle? x
I know it’s worrying for you but sometimes the reputation of chemo is worse than the actual event? All you can do is see how it goes and remember that his first one is in hospital so they’ll be making sure that he has no adverse reactions x
Neuropathy is a common side effect so he needs to keep his hands and feet well moisturised. Tell him to tell the nurses if his hands or feet start to feel hot or like pins and needles. Neuropathy can cause permanent damage but if he alerts them early enough then they might tweak his dosage to counter this?
I don’t think they would prevent neuropathy as it’s caused by the chemo getting right to the nerve endings and causing damage. Some people find it disappears after their chemo stops. I still have feet that feel like they’re permanently sunburnt - hot and numb - but it doesn’t affect my everyday life. If he discusses his worries with the nurses then they may be able to give him some tablets to help? x
Oh glad that what you’ve been told is not too scary. I think all hospital parking seems to be a nightmare. Have they offered him a free parking permit for when he’s having his chemo? I know it doesn’t help finding a space but you can avoid the hefty charges x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007