My husband has an ostomy bag due to cancer. He has had his bag for 8 months now. He empties his bag into toilet and when he does it sprays everywhere. I’m talking hitting the walls, the floor, the tub. I am constantly cleaning the bathroom. I have asked him to at least clean up after he empties, have left easy to access cleaning supplies and antibacterial sprays by the toilet but he won’t clean up. The nastiest part of this is that he won’t wash his hands after he empties his bag. I have seen him empty bag then walk in kitchen, touching food and surfaces . Quite frankly it is disgusting and myself and my daughter are at risk of picking up a bacteria from his bad hygiene.I’ve lost my appetite and I’m afraid to eat any food not knowing if he has touched it or not. I have told him repeatedly to clean up and wash hands and he does if he knows I can hear him but I have caught him numerous times leaving the bathroom a mess and not washing hands. He is not feeble and is able to care for himself and get around so it’s not a question of whether he can do this or not. I am at the point of asking him to move out because I just can’t deal with his poor hygiene but feel as though I can’t leave a man suffering from cancer. When I do ask him to wash hands and clean up a little he gets angry and sulks for days. He won’t meet with an ostomy nurse either. I am at my wits end.
Hi Tink60 If he’s no issues with his stoma then there’s no need to meet with his nurse. With regard to the emptying then a top tip is to put a bit of toilet paper in first and then empty the bag aiming at the side of the bowl rather than directly into the middle which causes the splash back. As tor the hygiene then I’m sorry but I don’t know the answer to that one x
That is unacceptable in my book . I look after my 82 year old mother with a spread and she is still trying to stay fresh and hygienic. .
I would be having a chat about that . Maybe ask the stoma nurse to get involved .
Our helpline team on 0808 808 0000 could speak to you about ideas but hygiene matters when it comes to bowel waste hence the reason gloves are worn in hospital settings .
I take it you don’t have two toilets ?
I have had a few PMs about things like this and the conflict it brings . You are not alone .
Take care ,
Court
Helpline Number 0808 808 0000
Hi aidee
It sounds like the poster’s husband has an ileostomy and irrigation is not an option with this.
However, it would be helpful if the type of stoma were clarified.
Sarah xx
Thank you for confirming Tink60 .
I have to say that I agree with court that this is an unacceptable situation you find yourself in, and there is no excuse for it if your husband is mobile and able to manage things himself.
I have a colostomy, which of course is not the same, but in the early days after my (bigger) surgery when I was not able to get out of bed, and had a drainable bag with very loose output I still would not have behaved like this. When I couldn’t move from my bed (I also had my bladder removed at the same time along with the whole of my reproductive system)) I had a bucket by my bed to empty the bag in if I had an emergency need for this due to how weak I was.
Cleanliness and hygiene were a huge priority for us both-so if I had used this bucket, my partner emptied it and disinfected it immediately, wore gloves, and I got cleaned up, even in my bed using “one use” towels and flannels.
I’m so sorry you are having to deal with this-there is really no excuse in my opinion.
Sarah xx
I feel so bad for you because I am living the same hell, except he is not my husband but my boyfriend. I also don't have any small children so I'm sure it's much worse for you. We don't live together but we do spend a lot of time at each other's houses and his is getting worse and worse because I refuse to clean up everything, only the areas where I have to function. I fail to believe that he cannot see the excrement on the toilet handle and the walls and the light switch and the door knob and the counter and the floor and the toilet bowl and the seat, yet he can function on a computer to work and can build small models and do other sort of construction projects. we met 10 years ago and a year and a half into the relationship discovered he had small bowel cancer. The cancer spread to the rectum last year and he has had his colostomy since October. When we first met he used to cook a lot and he still likes to cook except now he's doing it with shit under his nails. I am embarrassed to say anymore to my family for fear they will never wanna come to my house again. I keep reading whatever I can find online because I don't know who to talk to, and I'm reading a lot about depression. i'm sure he is depressed, and to be honest I am getting more and more depressed. He has a psychiatrist and a counselor that he has not seen in a while. I am so tired of cleaning up after him, both his candy wrappers and food crumbs and pop cans and dirty straws and everything else he leaves around, let alone the poop wherever I find it. He even steps in it when it his colostomy bag overflows and tracks it through the house, apparently oblivious to it all until I see it and scream. Then it's like I'm a bad person because he can't help that he has a colostomy. Anyway, I'm not going to pretend that useless advice like putting toilet paper in the toilet first is going to help anything. in fact I'm not going to give you any advice because I have none to give. I hope things have improved seeing as how this post is a few months old but if not just know there's somebody else out there in the same boat, you're not alone.
For goodness sake take up irrigation!!!!!! The supposed inconvenience of pooping for about half an hour every morning into an irrigation sleeve really beats the hell out of carrying a bag on your abdomen The life style change is amazing. No need to keep an eye on the nearest loo. Be carefree all day and night. GO FOR IT!
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