Hi, I’m reaching out to see if others on here have had similar experiences to my husband and can share some insights for me.
My husband had surgery for rectal cancer 4 weeks ago. Surgery went well and he was home a week later, but quickly started showing signs of infection which took over a week to get correct antibiotics. The infection was generating immense pain preventing him to even stand up, but this is now much better and he can take short walks and the immense pain is only occasionally now, still some infection there.
However, he still has pain in the bottom where the stitches are holding everything together. This is too painful to sit for even 30seconds never mind the constant warning of not to sit longer than 20 mins. He is also only getting an hour periods of sleep as wakes with the need to change position due to either the pain or a dead leg… it feels like no one is listening to us as the only response we get is “is all doing well and very normal”.
Is there anyone out there that has had a similar surgery and experience, any suggestions to help get more sleep and manage the pain..
Feeling like a helpless wife right now.
Hi Castledreams I’ve attached a link to an old post which may be helpful
As for managing the pain he really needs to speak to his colorectal support nurse or GP. I know it’s hard seeing him like this but it sounds like he’s improving slowly. It is a big op so encourage him to take baby steps and remember the mantra of ‘This too shall pass’
Take care
Karen x
Thank you Karen, useful link to see similar cases and feedback.
long road ahead for sure but I know we can do it x
Hi thassos
the surgery was to remove the rectum and anus, fitting a permanent stoma. This was following combined chemo and radiotherapy last year which visibly removed the large tumour but follow-up scan last October showed residual or re growth plus spread to the liver. So another round of chemo which finished at Easter, this removed the signs on the liver and primary tumour again. Surgery was the next step to reduce the risk of re growth.
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