Colon and liver cancer

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Hello, I hope everyone is as well as you can be, and I'm very sorry to get to know anyone who visits this post in such awful circumstances. My fiancé, in his mid 30s have been diagnosed with stage 4 colon cancer which unfortunately spread to his liver. This was picked up after trying to find out causes for severe anemia that felt like happened out of nowhere. As bad as the situation was, we kept a positive attitude, went through chemotherapy which brought reduction in cancer both in colon and liver. Outlook was good, planned colon surgery, 2 liver surgerys possibly on the way, and by the end of this year he should have been good to go back to normal! However, after colon surgery and following MRI and CT scans, it showed that last 2 segments of his liver that haven't been affected before, now to have lesions as well. The disease is terminal, statistics are harsh, he might have a year to live. Among whys and hows, I can't comprehend, how otherwise health man of such a young age, has such an awful fate. There's nothing comforting I can say or do. But NHS staff was very understanding and helpful, supporting us as much as they can. My fiancé will go back on chemo next week, and there is a plan in place to control the disease. I would appreciate some support here, perhaps encouraging stories of people being in the same situation and getting better or controlling the disease and living their lives to the fullest. Not trying to induce myself false hope, and I'm taking each day as it comes, but I'd like to hear how patients, who are in the same boat, do, as well as their family and loved ones. Thank you.

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I had a different type of cancer, so don't have the experience you're looking for, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list.

    ((hugs))

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi  

    So sorry I missed your post . I normally don’t but think there has unfortunately been a few people with a spread to the liver lately and I wonder if I have read the title and not realised it was a new post .

    I am so sorry to read about your partner . It’s such a blow when it feels as though surgery has slipped off the table . However surgery is most definitely not the only way to pull a spread back in line . If you look over on bowel cancer U.K. forum you will find people who are on chemo for years . He clearly is responding to chemo so that’s a positive in itself . 
    If you click on my user name you will see my mum had a further spread in her liver near the start and chemo did a good job the second time around .

    However it’s a lot to adjust to . The knowledge that treatment will remain part of their foreseeable future and all that entails. They say a stage 4 diagnosis is a marathon and not a sprint so keep the focus on the long focus . My mum is actually 14 years into a stage 4 diagnosis and trust me there was so many unhappy bumps on the road where we had to collective stand back up , take it day by day and work through it slowly reducing the tumour burden where possible .

    We are most definitely here to support you and I apologise once again .

    Take special care ,

    Court 

    Helpline Number 0808 808 0000

  • Hello Court,

    I really appreciate your post and sharing your mum's story. I am really sorry you had to go through this. 

    We focused so much on the surgeries, thus it came as a huge shock to hear that operation is not something possible at this moment in time. It was upsetting to hear that between the scans after his first chemo lot finished and scans after colon surgery, few new lesions appeared in the liver.

    We will also be trying to get a second opinion, perhaps to see if there is anything else we can do. My fiance is willing to try anything to get better and stay with us for as long as it is possible.

    I read your post to him, he was enquiring among plethora of treatments, especially when it comes to chemotherapy, which drugs did help your mum the most? (I hope this is okay to ask, and I understand that what works for one person, may not work for someone else)

  • It really depends on the cell type but my mum has only ever had one chemo combination partly due to other options not being so readily available back in 2009 .

    She had Oxaliplatin and cap tablets for two years in a row and at the end of the second year there was a surgical window opened up . 
    However as things are never straight forward in the world of cancer she developed a spread to her lung which was removed with surgery only . Then when we really thought she was in the clear and even managed to be discharged she had a further lung spread to her lung and lymph nodes . She used Cetuximab only this time and again mounted a great response .  
    Both achieved great things and the hope is that you can knock it down to open up other options . Or you can tolerate different chemo options and as long as they keep responding then all seems good and they treat it as a chronic condition .

    My mum had her larger surgery at a centre of excellence. They wanted the chemo first again and removed 73% of her liver . The chemo achieved a lot that time .

    I did not realise it was your partner I replied to !Grinning

    Take care ,

    Court 

    ps I was typing my first post and getting interrupted as usual by the family . Will check my typos in due course . X 

    Helpline Number 0808 808 0000

  • Sorry for delay, life got in the way... My fiancé doesn't like reading things like this himself, but likes me sharing and talking about what I have read or other people told me! He just finished his first chemo session after colon operation. Recovering well, however,  he is understandably upset and lost with the news we received about his condition last week. We are hopeful we will get more information about treatment options from the private consultant. My fiancé is willing to fight this disease and do anything to get better.

  • No need to apologise we all understand. You do what you can at a time like this .

    Our family found it helpful to consider it in stages . Each part of treatment reducing the tumour load in the liver and hopefully opening up new options .

    Good to hear he is going for a second opinion.

    Its a toe by toe journey for sure .

    Take care ,

    Court 

    Helpline Number 0808 808 0000