Follow up appointments

Hi,i think i would be on the phone ASAP to my consultant and see what,s happening. It may be because you declined chemo but other options may be available and i would want to know

Hi Milkmaid66 The NICE guidelines are that you should be monitored with CEA checks and scans tor the next 3 years so it might be worth ringing your colorectal support nurse and just checking the frequency of your checks? The fact that you declined chemo should not make any difference to your monitoring 

Take care

Karen x

Thanks,  I did ring, apparently I get à blood test at 6 months and a  check at 12 months,  I don't think  this is enough  but cannot afford private health care 

Hi Milkmaid66

Did you have your follow up post operation? 

Also you should have an appointment with your stoma nurse 

I didn’t have chemo either though it wasn’t offered, I had my consultation with my surgeon and was given my surveillance diary with dates of future monitoring which gave me confidence. 

Best wishes 

Saw an oncologist who suggested chemo, nurse phoned a couple of days later, that's when I  refused chemo. Stoma nurse has done her two visits and stoma team have phoned. My concern is no one seems to want to check to see if cancer was completely removed or has it continued 

Have you seen your surgeon for a follow up appointment? 

Saw him day after op but not since 

Oh. I thought that having a follow up after surgery was a given. I’m sorry about that 

I was seen a couple of weeks after operation and he examined and checked me out and explained exactly their procedures for monitoring then I saw my nurse who gave me a follow up diary

Can you phone your colorectal nurse team for reassurance?

Will try that thanks 

Hi lovely sorry you feel like you've been abandoned. My husband had his stoma formed after emergebcy surgery for ruptured bowel due to colon cancer on 1st October. We had a scan 4 weeks later and then after a further 2 weeks a surgical follow up and a week later oncology follow up. We have had 2 stoma nurse follow up appointments since his discharge and 3 weekly telephone oncology appointments while he was on treatment. 

We are due another scan and surgical follow up in March and then if all ok nothing for 6 months then it goes to yearly checks. Hope this helps, I feel like you should have been seen. See if your GP can chase things for you. 

Take care