Any stoma help available

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Hi my husband has a colostomy following emergency surgery back in October. I got home from a 12 hour shift tonight and he has a sore area appeared under his bag seal looks quite raw. I've checked his temp and all good and apart from it being a bit sore he feels well in himself. I've left a message with the emergency oncology help line but our stoma nurses aren't available until Monday. 

He's also due his 3rd cycle of adjuvant chemo on Monday so I'm feeling really anxious that this sore spot might delay him. Any tips or support would be great. Thanks Blush 

  • Hi  Soreness is often caused by the pouch not fitting well enough and allowing the output to leak onto his skin. Remeasure his stoma and check that the holes are the correct size. The stoma nurse will be able to provide you with things like extra strips to ensure a snug fit and a powder to help soreness. 
    I’ve heard before that a very thin layer of calamine can be applied but it must be really dry before reattaching the bag as you don’t want to risk it not sticking?

    You could copy and paste your post onto the colostomy/Ileostomy site for some more help? I don’t think that they would delay his chemo but someone on the other board may have been in a similar situation and able to advise?

    https://community.macmillan.org.uk/cancer_experiences/ileostomy-and-colostomy-discussions-forum#pifragment-13880=1

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • I've found the mouldable seals very good at reducung redness and sores around my stoma. I had quite a bad rash after my surgery in August, and have been using the seals from October and they have worked wonders. I only found about them by chance after a call with my stoma supplies provider - they never mentioned the seals when when i was in hospital. 

  • I used to get the same soreness in the early days. My stoma nurse suggested that I use a Fusion stick to treat the skin prior to placing the ostomy pouch. The stick is treated with an adhesive enhancer and skin barrier. No problem since then and the ostomy pouch bonds to the skin much better. Note also that removing the pouch can pull hair out and lead to sore and red skin. Every now and again I shave the area around my stomas (very carefully!!).

    Dulac

  • Thank you for this advice it's really helpful. He is a bit bunged up from his IV chemo on Monday so no bag change this week so far which I'm hoping will rest the skin and I'm just checking the area around the seal to check for redness and taking his temp. 

    Thanks for replying it's the first time this has happened to us since his stoma was formed 1st October the nurses said might be due to the chemo as well as general wear and tear. 

    Take care Slight smile 

  • Hi. Just seen your post.  I had emergency surgery almost a year ago and had a sore patch too.  Stoma nurse gave me some Brava powder.  It worked really well and I haven't needed it since.  You can buy it over internet too.  Hope his recovery is going well.

    Helen