Infusion

Hi LinSA 

We are still trying to prop up my mum’s magnesium . Not the easiest to do with food either .

Are you using Cetuximab?

This is a bit of a culprit for dropping magnesium apparently. My mum had ten months of it and they gave her daily powders to take morning and night . She also got tablets at one point .

The last reading she got was 0.3 which way too low so we are still on the job .

The only issues with the powders is more loose bowel movements so that aspect does need some management too .

It does take her a wee while to bring her magnesium back up so have a restful few days if you can . There are lots of guidelines on how to add it into your diet .

However if my mum could have had it through an infusion we would have opted for that and did ask . At the bigger unit they did it . It was much more effective that the powder ones . 

How have you been getting along ?

Court 

When I say more effective I meant in terms of the speed it came back up . Plus we were suspicious mum might not have been getting the bottom of the powder drink !

Court 

I could not tolerate the powders they gave me. So it was my first infusion yesterday. It's a long day in the chair...... this morning I don't think I feel much better.  Maybe being too optimistic!! I will be having quiet day!! No I'm on Panitumimab. Hope I spelled that right.  Folfiri and Irinotecan. So which is the culprit if not all of them!!!! I will be on rolling infusions and weekly blood tests.  Phew  we endure a lot don't we!!???? Hope your mum is doing OK!! X

https://www.macmillan.org.uk/cancer-information-and-support/treatments-and-drugs/panitumumab

It’s another of the targeted drugs and hits the magnesium too .

It’s a long day in the chair for sure . It’s an intense routine and it’s only now  without the hospital appointments that I realise how much it was and that’s without going through treatment .

You are doing so well and keep speaking to your team if you feel it’s getting too much as small adjustments can make a big change to the quality of your life .

They are there to support you and as they say it’s a marathon not a sprint so they want you to go the distance . 
Have a quiet day and hopefully most of the chemo will start to exit .

Take care and here’s to super shrinkage going on to !

Court x 

Thanks for the encouragement!! Trying to keep my chin up and as you say I'm in it for the long haul!! Somedays are harder than others!!!

Enjoy Christmas!!