Hi, I had my reversal surgery almost 2 years ago (February).
at yhe beginning was difficult, pain, pain, pain. Then it got better. But the last year it has been a nightmare, pain, constipation, living around going to toilet, if I go, when I go.
the last 10 days have been horrible. I had shingles in my hear (very painful) I have been taking antiviral so constipation, but not normal constipation, awful, pain all over the place. Piles so sitting down was painful.
suddenly I realised what king of future I have. I can’t take any medication (if lost half of my colon) anything I take affects me. I’m 51, still 20 years more to live, but what kind of life!!
sex is out of the picture, eating what I like gone, never know if the day will be a good day or I’ll spend our in the toilet (one day I timed it, 16 hours on and off to empty my bowel.
plus my husband is getting fed up of me (I don’t blame him), I’m not sexy or pretty any more, we can have sex, most of the time I’m in pain. What kind of wife is that???
Hi Martina3 I’m really sorry to hear that you’re struggling and it sounds like the shingles has been the icing on a not very nice cake. You seem to have a lot of issues going on so maybe an appointment with your GP would help and perhaps a referral to a gastroenterologist to sort out the toilet issues? Would you consider reversing the reversal and having a stoma back?
Were you given any dilators after your radiotherapy? The treatment can cause shrinkage of the vagina but this can be helped by using the dilators with a lubricant. If the pain is caused by scar tissue then you may find that intercourse is uncomfortable but helped by using a lubricant and a sensitive considerate partner who’s prepared to take things slowly and cautiously.
https://www.macmillan.org.uk/cancer-information-and-support/impacts-of-cancer/sex-and-cancer
Radiotherapy can also bring on early menopause which may be contributing to some of the emotions that you’re experiencing. Your GP would be able to help with this again and the Macmillan Support Desk is always there for a chat?
Hope some of this helps
Take care
Karen x
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