Newly diagnosed

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My dad was diagnosed 3 weeks ago during colonoscopy. We have heard nothing more, other than he has an appointment with the surgeon on Wednesday. Is this the normal routine? We dont know what stage cancer dad has or what the next step is. My Dad had a CT scan 2 weeks before the colonoscopy due to a blood test result but the ct scan seemed to be clear.  

  • Hi

    AS far as I know if a blood test has flagged up high CEA protein that then follows that a C.T.is needed. Ask at the appointment what Stage your Dad is at & they will tell you the treatment options. Good luck. 

  • Who do you think my dad will see on wednesday? His appt is with the surgeon and his team i think. Will it be their responsibility to inform us of what stage, what course of action? I thought we may have seen a cancer specialist? Oncologist? X

  • Evening Kafebrown 

    when I was diagnosed with cancer in sigmoid colon , after colonoscopy and CT scan my first appointment was with surgeon as well , he explained where cancer is and after MDT meeting I got my second appointment with surgeon as he told me the MDT decided to go with surgery first. I think it’s common to see surgeon first as some people go to surgery as first treatment as another need to have a stoma before  treatment as everyone is different and different location of tumor and different plan of treatment 

    Natallia 

  • Hey Kafebrown 

    regarding stage I was told in my situation they will know more after surgery and it’s depends on what CT scan showed or migth need more test as MRI or even PET CT. I think you will know more after appointment 

  • Thank you for your quick replies…x whats making everything so much more worrying is that my mum passed away in August….it was quite sudden and my dad is really struggling xx

  • After my colonoscopy I went for a ct and mri.then had an appointment with the surgeon.there was no MDT meeting as I went straight to surgery..I was told they only really know the staging after the surgery

    I was only refered to an oncologist after the surgery to see if I needed mop up capox.

    So as you can see everyone and every hospital is different.you can only "go with the flow"

    All the best for your dads treatment

    Kath

  • My first step after colonoscopy was with my surgeon who performed colostomy as tumor was inoperable.  Couldn't get margins.  After 4 weeks of recovery then on to oncologist for treatment plan.  There was only 2 days between diagnosis and colostomy op as tumor was very large and about to block rectum.  I was glad to get surgery over and move on with treatment.   8 months down the line I am on with my second round of chemo and hope for the best.  Scans are encouraging.  Stay upbeat and keep pushing on!!  Xx

  • With treatment they estimate I have two years, without then it's one year. I feel they always add a few months to give false hope. I was told chemo cannot cure me it's only to make me more comfortable. I feel I am on the Snakes & ladder board, just got to the top after horrendouse 4 months in hospital & gained strength only to find my life span is 2 years if I am lucky. 

    I have made the decision that if I don't have a quality of life then I will cease treatment & go quickly. For me, I cannot see the point of in/out hospital for treatments that make me ill again with no hope at the end of it. I refuse to be hooked up to machines.