Advice requested re Diverticulosis in inactive bowel

  • 3 replies
  • 124 subscribers
  • 504 views

Hi all,

I've not been aound much lately as I've been (selfishly?) getting on with my life. I apologise for that as I could, perhaps, be offering more advice here from time to time.
 
Anyway, I've had some recent issues with my large bowel which has involved excess discharge of mucous and bleeding from my back passage. I have a stoma and my large intestine is generally inactive although it still produces mucus which used to pass quite harmlessly from time to time along with "wind" on occasion.

However, in recent months it has been abnormal. Quite excessive and foul smelling and I also developed an infection which was treated by antibiotics. To cut a long story short, I was referred for a colonoscopy/sigmoidoscpy and the good news was that there was no sign of anything sinister in terms of suspected tumours etc. That was my biggest fear as I had a lot of treatment a few years ago. However, I had done very well and was even given the "all Clear" in  February after a final scan.

However, the colonoscopy did reveal that I have quite a few diverticulae scattered around. It's possible that some of them had "flared up" and caused the infection and general irritation. They couldn't confirm that for sure.

I was given lots of good information re diet and such but I feel that a lot of it was more applicable to patients who have active bowels...i.e. fruit, veg fibre etc . Of course, it's good to have a healthy diet anyway but I'm not sure how effective this will be if the food doesn't actually pass through my bowel?

So, I'm wondering if anyone else has any experience of such issues or advice? 

I will, of course, try to eat and drink sensibly and I eat lots of good things already. I'd imagine drinking plenty of fluids will help too but I'm on the look out for other suggestions.

Perhaps many of the benefits of the diet suggestions may also "work their way through" to the bowel in any case even if the "roughage effect" is not possible? I don't know.

Thankfully, some of the issues had already been settling down prior to the procedure and there was quite a lot of "gunge" washed out by the enema. Hopefully, it may not be as big an issue for me in the near future. Obviously, however, I'd like to keep on top of things.

Thanks meantime,

John

  • Hello John

    I have just read your post above and am sorry to read of your issues. I also notice that you have not had any response from the Community regarding your questions. I am sorry I can't answer your questions as I have a different cancer and hang around on the Prostate forum.

    As I have replied however your post will be "bumped" back to the top of the forum and I hope you will receive a reply from other members of the Community. You could also ask your question in our Ask a Nurse section. Just click on the link I have provided and either copy and paste your question or ask it again.

    I wish you all the best - if I can do anything else for you please don't hesitate to contact me.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Thanks Brian,

    Yes, it's been a worrying time of late although I've not felt really ill. It was more inconvenience than anything else and having to run to the toilet every five minutes. The blood was a concern but now I realise that it wasn't tumour related it's not so bad.  Thankfully, I won't have to go through treatment like before or worse!

    I think the antibiotics did help and my stoma nurse suggested glycerine suppositries too. So, by the time I went for the colonoscopy, things had been starting to settle down although not completely.

    As I said, I had a good "flush out" and I've been feeling much better especially over the last two or three days.

    However, this may not last and I'm thinking  about how best to take care of the bowel longer term.

    I will also take your advice re "ask The Nurse" and see if I can learn a bit more.

    Thanks very much for your interest and I wish you well in the future. From your bio, it seems you are doing well so far which is great.

    All the best,

    John

  • Hello John

    It's not a problem - you need to be on a cancer journey to appreciate the "issues" we all have. As you know from reading my bio - I thought I would put back into this Community what I have had out - without people on here I would have no idea about my specific cancer!!

    As you say things are "getting better" and it's a learning curve - but from what I read we all have different reactions with our bowel as to what we eat and drink - so I hope you get the answers you need.

    Best wishes for the future.

    Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.