Had a very bad day mentally.

Hi Robby63

Sorry to hear that your struggling since the resection. I haven’t had the same I had a LAR with Ileostomy so I had a straight forward recovery 

Have you tried lopermide? That can slow things down and diet is crucial. Low fibre in fact I had no fibre to start with.

keeping a food diary is really helpful to find what’s aggravating your bowel 

Others will be along soon 

Sending you a hug 

Thanks, Anne the food diary makes sense, I already have a pain diary, dosage needed, pain score etc.
I'll get that started tomorrow.
Again many thanks.

No problem. 
I started with really basic food. Almost good for a toddler. The bowel doesn’t like being messed about with and can have a tantrum so I likened it to that. I had to do it twice as I had an Ileostomy so my output was from my small bowel it was out as fast as I put in to start with. But with my diary and food I was confident with I was absolutely fine 

When I was reversed my bowel had been asleep for thirteen months and boy oh boy did she wake up angry 

Incontinence pads at night definitely, I slept downstairs a while if you click on my name there’s more details but that’s not important 

Its horrible and I feel for you 

So if you try one slice of white bread with butter and weak tea for breakfast. Then sorry white bread sandwich with a filling you feel safe with. I could manage fish fingers( see toddler food) dinner mash potato and chicken. 
Hopefully that may thicken up your output. If not a Lopermide / Imodium will help 

Good luck with it 

You can check out LARS it’s in the stoma support which could help many after a resection. 

 Robby63 

You are allowed days like that . It’s a lot you are going through and your “team Macmillan “ is here for you until you find your feet again .

I Hope tomorrow is better for you .

Court 

Hi Robby63. Feel free to rant whenever you like - cancer is tough and, as you say, affects those around you too. Please don’t feel like you’re letting people down. Like you, I’m quite an independent person, and I felt guilty that my hubby was getting in from a days work and having to start making tea or do household tasks however he assured me that he didn’t mind because he felt it was something he could do to contribute to my recovery. I think he felt a bit helpless watching what I was going through and unable to help so making tea and cutting my stoma bags for me were his way of helping where he could - he even sacrificed his spot on the settee when I wanted to lie down! 

You’re perfectly entitled to have a duvet day - no excuse needed - but try not to let it take you under the cover for too long. Try to get out for a bit of fresh air even if it’s only to sit in the garden and throw a ball for the dog? If you don’t feel up to taking your granddaughter to school would you feel up to a ‘play date’? My granddaughter is a few years younger but loves drawing and colouring with her grandad or doing a jigsaw? Perhaps you could have a little afternoon tea together?

Lastly I shall share the mantra that got me through some of my hospital stays which was ‘This too shall pass’. It wasn’t always easy to believe and sometimes something else would pop up and kick me in the butt but it did pass eventually. Hang on in there and keep posting - we’ll listen, support and send virtual hugs and handholds when needed

Take care

Karen x

Thanks Anne I did stick to bland plain food to start with then became a little more adventurous, looking back this could be the problem.

Funnily enough my specialist consultant that's doing the next operation said the bowel needs time to adjust, some take longer  than others.

Robby.

Hi Robby63

i hope that it helps. The bowel definitely does not like being man handled. 

Take care and keep chatting here if it helps 

Lovely words Karen, thank you so much, I had up until now been saying that, this will pass and move on. 

But today has been one of my worst and it's not pain orientated. Trying to get into a positive mind frame has been futile today.

I will take tomorrow as a fresh start, my granddaughter is spending the afternoon with us from school. 

Thank you Robby.

Morning Robbie63 

It's when we are low that every negative thought and feeling comes to us and we find it almost impossible to see the silver lining. 

I have days when I can't face the day ahead even if I haven't got anything planned. 

You have been, continue to be and will be again a fantastic father husband and grandfather. 

Wishing you the best 

PaddyBud 

Hi Robby!

This is what this forum is for to come on and rant, scream or whatever. I sadly lost my husband in June this year but please don't let that alarm you as everyone's cancer journey is different. He fought his for almost 2 years at one time getting the all clear only for it to return cruelly 5 months later and this time along with numerous bouts of sepsis took him one the 23rd June. You are allowed to have your `dark days` that's a given. I am now going through the same thing with my sister. She goes for surgery a week tomorrow (Wednesday 11th Oct) she has been told however that her diagnosis is not at bad as what Jay (my husband's) was. We have a little granddaughter too but she is only 3 years old and I am sad that her `papa` won't see her grow up. He was over the moon when he became a grandad 3 years ago he never saw it happening. She's my `little ray of sunshine` now and keeps me going. I wish you well on your journey with this beast of a disease. Take Care and my best wishes to you. 

Vicky x