I find having this stoma has ruined every aspect of my life , my confidence , work and of course relationships have all suffered .i feel very ugly and depressed. I can never enter into a proper relationship with someone of the opposite sex because of the total mess they have made of my once athletic body . From the very moment they failed to do a reversal 4 years ago i have rarely socialised and cut down on my work by 50%.......No doubt no one wants to read this negativity , but there you have it , the truth.
Hi Longfellow
I think it’s perfectly valid to say how you feel about having a stoma, even if it’s negative because that’s your reality and experience. It’s sad to see how it has affected your life so much, and for such a long time. I have 2 stomas and while I wish I didn’t have either of them, I accept that iI’m only still here because of them, and I want to live my life the best I can.
Doesn’t mean I don’t hate them sometimes and wish I could even have one day without them.
Sarah xx
So sorry you are feeling like this.as Sarah ssys its perfectly valid for you to express how you feel.
I just wish there was a way of helping.I dont want to give the usual platitudes as I expect it really wouldnt help.But would it help at all to talk it over with the staff on the macmillan help line.
Kath
Talking is not going to help , they will not get rid of the stoma, erectile disfunction , the mucus coming out of my back passage , the DVT , the hernia and other problems they have caused me. I would have ended it all if I hadn't got children because this life is not worth living .
Hi Longfellow
Sometimes talking isn’t possible. I’ve had moments like that in my life. When my son was in a car accident. Talking wasn’t apt. I had medication and sat by his bed
Maybe writing here helps you release the pain of how you are feeling.
Your children are important in your life. Can you plan some time together. They must be concerned for you
sending you a hug
Ann
I do feel that your feelings would be so much better expressed here If it helps you
Ileostomy, colostomy, urostomy and any other stoma support
im not sure anyone would be excited to have a stoma and a huge operation.
You may find Blake Beckford an inspiration.
He’s a model that raises awareness of living with a stoma. The before and after shots speak volumes
Ann
Beckford is no inspiration to me whatsoever , I hope he's happy with his stoma , I am not but my life would be an inspiration to him .
writing on here is no help at all and yes i spend times with my kids , but none of it gets rid of this disgusting stoma or any of the other things that went wrong because of incompetence and neglect
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