Recent Bowel Cancer Diagnosis

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Hi,

After months of going back and forth to the doctor and specifically being told its not cancer due to my age (39). I finally had a colonoscopy two weeks ago and was told i had cancer. The biopsy came back today confirming and I get an MRI on Wednesday with a CT scan on Saturday and then the multidisciplinary team meet on Tuesday.

I have been really good at not googling but I am not sure what I should be asking or what to expect.

Any guidance would be appreciated.

court over 1 year ago

Hi Steelynds

Just want to welcome you to the forum .
https://www.macmillan.org.uk/cancer-information-and-support/diagnosis/questions-about-your-diagnosis

https://www.macmillan.org.uk/cancer-information-and-support/bowel-cancer#:~:text=Call%20the%20Macmillan%20Support%20Line,ask%20an%20expert%20your%20questions.

I have included a few Macmillan information booklets . One regarding general questions to ask and one more about bowel cancer itself .

Also well done for not googling inappropriate information. Getting reliable information is a must but so many people google and get scared . Bowel cancer is very treatable and that’s important to keep at the front of your thoughts .

So hard for younger people to get heard !

Take care ,

Court

Helpline Number 0808 808 0000

CrumpetsOrToast over 1 year ago

Hi Steelynds.

Sorry you find yourself here.

I found myself in a very similar position last year. My GP had used the 'too young for cancer' and was resistent to offer me FIT and cancer fast track, also known as 2 week waitlist (2WW).

My favorite guidance was a Bowel Cancer UK publication that explained key concepts of human anatomy, some useful medical terms and the different treatments that lay ahead. Here is the link:

https://bowelcancerorguk.s3.amazonaws.com/Publications/YourPathway_BowelCancerUK.pdf

Macmillan and CancerResearchUK are all good sources of information

Jools63 over 1 year ago

So sorry to find you on here and at such a young age. Have you been assigned a specialist nurse yet? That’s usually one of the first things that happens when you’re told you have cancer. I have found mine to be a mine of information, reassurance and support. They can usually guide you through the process. Good luck.

Dulac over 1 year ago

Welcome to the club (the membership seems to be growing). You are not alone and treatment paths seem to be well tried and tested. I thought it was the end of the world when bowel cancer was confirmed. However, I now know that the world hasn't ended and recent, regular developments in treatment have certainly made a difference to our respective outlooks. Keep busy and do not dwell on negative thoughts or unofficial websites and quack cures. The UK charities offer excellent, straight talking advice.