Light at the end of the tunnel- kinda

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I had my post LAR operation meeting today which is at the 6 week mark. Surgeon said the histology was very good on the part of the rectum/bowl removed with no cancer found in the wall or Lymph nodes!

However he couldn't explain why, Oncology want a meeting with me. He said I wouldn't normally need 'mop up' Chemo with results this good but they may be offering it as optional.

Not sure if this is common. The end is in sight but always another thing to get through.

If no chemo is needed then they can proceed with the ileostomy reversal although the waiting list could be 6-9 months long!

No wonder they call it a journey!!

Any advice on what this type of chemo is like? I had tablets at home for my chemo in Feb/March. (Capecitabine)

  • Hi Richard21,

    My husband had the sand operation at the same time as you, he was told no cancer seen either.

    we had to see our oncology doctor too and got us worried, but he confirmed the news that what they had taken out rectum /bowel was clear of cancer, wished my husband a good life and explained that we would be on the 5 year check.

    the surgeon said that my husband was going to have a contrast X-ray at some point to make sure that everything has joined up. We are expecting the reversal October/November time.

    We live in Essex maybe the waiting list is shorter here.

    I hope you don’t have to have more chemo and can’t see why you would. Try not worry and hope you get your reversal soon Fingers crossed

    regards

    sandra

  • Hi Sandra

    Thanks for your reply. I think that's what my surgeon thought. He also mentioned about the bowel joint needing to be checked before the reversal. 

    Great to hear your husband is doing so well. And a big relief for you no doubt. 

    Think it's time for a small beer!

    Richard x

  • Hi Richard21 I  don’t know if there is only one type of chemotherapy used for “mop up” purposes. You’ll need to find out exactly which one they may offer you in order for anyone to offer their experience. Treatment after surgery seems to vary between health authorities, and has changed since I had my primary diagnosis back in 2019. It will need to be a decision based on pros and cons I’m afraid. Good luck.

  • Thankyou Jools63, good advice. I am realising how individual chemo therapy can be!

    Will have to wait and see.

    I hope things are progressing ok for you.

    Richard.