Well, after a few years I finally have this diagnosed. Collecterol said 'no' but why wouldn't it, as the TME removed 40+ lymph nodes!!?? (I had a LAR and TME for rectal cancer)
A few years of not being believed, and not believing myself, and blaming the long covid. To be fair I also have oedema, probably from the long covid. This was amply proved when I tried a fortnight off the furosemide, and only made it to 11 days as I hurt so much and couldn't breathe!!! And instantly gained 3kg, luckily lost when I restarted the meds. Well done the GP who believed me.
So, a telephone appointment today, and a real one in a fortnight. I need to get on top of this so I can still walk in the future. It can't be cured, but can be very well managed, particularly if caught early (sound familiar?)
So anyone else who has lost lymph nodes, and gets swollen ankles, even if only a cm or two, please act! Cancer has a lot to answer for........
Gemmary so glad you were at last believed and got the correct diagnosis.Many lymphoedema sufferers endure this. Have you heard of the lymphoedema support network? Look them up online. They are extremely helpful. Good luck with it all x
Onwards and flatwards (don't do hills) and keep walking if you can!
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