Hi troops,
I am completely new here, please be patient. I recently had surgery to remove a cancerous tumor from my colon. The surgery went well (apart from nerve damage to my left leg) LONG STORY!!
I now have to decide whether to have "clean up" chemo. OXALIPLATIN and CAPECITABINE together. Does anyone have any experience with these drugs ? If so how did it go ? Any advice or tips will be greatly appreciated.
Thank you again for having me here
Hi Skimbo and a warm welcome to the board. Oxaliplatin in iv form and capecitabine in tablet form is a very commonly used combination for bowel cancer - it’s often shortened to Capox or xelox. You can type any of these words in the search box at the top of the screen to see previous posts and there’s also a current one at the moment which I’ve linked in below?
Side effects of Capecitabine and Oxaliplatin (Capox)
There are lots of side effects unfortunately but you’re highly unlikely to get all of them but some like the cold touch syndrome are pretty standard. We started a post about it a few years ago which might be helpful -sometimes it’s good to know what’s a normal side effect?
I had it 6 years ago and tolerated it pretty well. The nurses keep a close eye on you and there are lots of different pills and potions to manage any side effects. You’re started on the maximum dosage for your weight and height but this can be reduced if the side effects are too much.
A friend advised me to throw everything I was offered at my cancer so I did and I’m now over 6 years ‘no evidence of disease’.
Glad you’ve joined us and feel free to ask if there’s anything you’re worried about?
Take care
Karen x
Hi Skimbo, glad that you are post surgery and am so sorry about the nerve damage to left leg. I had a HAR last July, final staging T3N1MO. Chemo was recommended, so I had 4 rounds of CAPOX, the same regime you were offered. I was extremely lucky, only had mild side effects, was able to work through the chemo except a week in round 4 where I was exhausted. The side effects I experienced were nausea which I kept at bay by sucking lemon sherbet sweets, eating small regular meals. I did have throat spasms with cold drinks on the day of the Oxal infusion but wore off quickly, I developed neuropathy in my hands and feet, which I still have the residual numbness in my feet, hands are fine and feet are getting there.
Advice, I would always accept the medics recommendations to potentially reduce the chanes of further occurrences, so will always be the belt and braces approach for me. I could not live with any regrets if I knowingly did not do all I could to maintain my wellbeing. It is a personal choice and I for one would fully support what an individual decides. Good luck with chemo x
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