Bowel cancer CARERS, FAMILY & FRIENDS chat

Hi all!

Seems we are all bit sad and flat just now. Haven't been on here for a while either not that much to say. Think its the changing season as well and the nights are drawing in and those of us (no disrespect to the rest) who have lost our partners are just begiining to realise how lonely it is now without them the days getting shorter and the nights getting longer. I have a funeral to go to tomorrow morning. It's not a close family member but the man who lost his wife was a great friend of my dad and was always there for him at the end and Colin was more or less there every day my dad was in the hospice before he passed so I feel i should attend for him and pay respects to his wife. I then need to rush away because it is Myla's (my little granddaughter) birthday tomorrow too so it will keep me busy. Nicole has had to be called into work tomorrow and so I need to come back home as William is dropping Myla here so he can go home and get things ready for her birthday tea. He's on nights this week so hopes to get a few hours sleep inbetween. I have been feeling very flat myself still. I think it is all this going on with my sister too so soon after losing Jay. It's just really hit me I think over the last couple of days that he has actually gone and some days I forget he has gone and then it hits you again like a wave. He's gone. I hope we can all feel better soon and good to know we are all here for one another when we need to come on here for a rant. Take Care everyone. 

Vicky xx

Hi Vicky. Don’t apologise as there are only a few of us left with our partners. Les has to speak to the consultant on 28 of this month. I am dreading this. It must be so hard for you with your sister soon after jay., I can’t imagine what you are going through.  I really hope you have some better days but as Christmas is looming I doubt it. I really feel for you.  Just make sure you take care of yourself. Just sending you a huge hug Maggie xx

Aww thanks o much for the hugs Maggie I really appreciate. Went to the funeral yesterday quite a bit turnout she was very well liked. It was a celebrant conducting it same I had for Jay these are better I think as it concentrates on the person and the funny stories they tell to lighten things a bit. I then came home and William was here with Myla and he left but the wee soul had a meltdown so try as I might couldn't get her settled so phoned William and he came back and took her home. Then later yesterday me and Margaret (my sister) went over to William's for the birthday tea. Plan was I just take her back with me but then she had this terrible `meltdown` wanting her mummy and daddy and screaming blue murder. Had a nice afternoon though and the wee one got spoiled rotten but I felt like a fish out of water it was mostly Nicole's sisters and their partners and Williams living room is quite small so most had to stand so I said to William I would go after a while and let the rest of them have a seat as Margaret and myself were taking up the comfy seats on the sofa. Myla (granddaugher) had calmed down by this time as you may gather and wee cousins came too two of Nicole's sister's wee ones so believe they were having a sleepover there last night. It was a bittersweet day for me I think just because Jay wasn't there to see it and the funeral yesterday brought it back because it was in the same crematorium I had Jay's funeral. But I'm fine now. Just hope William and Nicole survived the night with the 3 wee ones.

Hi Maggie sounds like a really busy few days with lots of noise I'm sure from the little ones you can never tell how they are going to be she obviously wouldn't have settled which would have been stressful for you so best stay with mummy and daddy. You  were brave to go to a funeral so soon after Jay well done for going bet you are ready for a few quiet days ahead xx

Hola Amigos from Spain, sitting at 1am having a small beer with the kids!!

Cheers Kevi 

Helen x

Good morning,

I'm new here and hope you don’t mind me joining the thread. 
my dad got diagnosed with stage 3 bowel cancer earlier this year, he had some of the bowel removed and went onto chemo and a trial. He was suppose to have his last chemo not long ago, but he’s been told the chemo isn’t working and his CTDNA levels have gone up to 14.
we’re now back to square one and I’m terrified of the results I’m (28f) the oldest of 2 my little brother is 25 and my parents are still together. 
I’m petrified that dad won’t have good news and I will be the one my family turn to for support (it’s usually dad everyone goes to) as I’m seen as the stronger one as I don’t show emotions and thing logically

Helen enjoy. Just a bit envious. 

welcome worries. Anyone can join the forum to moan, laugh and grieve. I am sorry that your dad. My hubby was diagnosed with stage 4. He is on his 10th session of chemo.  What trial did he get on.  I am also not sure what ctdna is as Les I don’t think has had that blood test. Try not to worry too much as there is a lot can be done. Take one day at a time and enjoy it with your dad. We are all here for you.  When does he go and see the oncologist again.  Maggie xx

Hi Maggie,

im so sorry to hear about your husband! How is he doing? How is he coping with the chemo? He got on an American trial, I don’t know much more about it unfortunately. CTDNA is where they take a blood marker to see how the cancer is progressing, 10-20 is in the bad region of being aggressive and spreading. Thank you for your kind words, it really means a lot. He will be seen after they get together this Friday coming, I’m away on holiday when he gets his results, I’ve asked him to let me know what’s happening whether it’s good or bad, but he doesn’t want to tell me whilst I’m away, I’m one of those people I would rather know though as I will just worry the whole time and I want to be there to support my mum and brother even if I’m in another country. Sending you my love. Kelly xx

Hi Helen enjoy the sunshine will be  jumpers when you return enjoy the time with family xxx

Welcome worries my husband also had stage 3 trust me you are at the start things can change along the cancer journey please take 1 day at a time we all remember the start the news is terrible but you start to take a deep breath and my husband bloods go up and down and have learnt to wait to see the team before I panic we are still dealing with the Cancer as he to had to be taken off Chemo we are all here at different stages but I enjoy small things each day your Dad I am sure would want you to be strong and continue with the life xx