Bowel cancer CARERS, FAMILY & FRIENDS chat

Jkee just hang on in there. It won’t be long now. Just popping out will speak when I get back xx

Hi Jkee 

Really feeling for you . My mum’s electrolytes would get knocked off easily and she was a bit similar to what you are describing. Hopefully it’s something that can be quickly sorted . Struggled through a few emergency admissions and it’s so stressful.

Thinking of you both .

Court 

Thank you court he is in a&e having bloods told him to check for electrolytes would they normally check for this x

He got a ambulance at 6pm in a&e had bloods ok going for a brain scan no idea what's going on in one way hoped the blood would show something nothing yet xx

Hi Jkee 

Yes , they would routinely do that .

My mum got sent for a few brain scans too . It’s frightening but think it’s part of the vigilance they give them .

Take care ,

Court 

Jkee sorry I did not reply again.  Pleased he got to AandE.  my thoughts and prayers are with you and fingers crossed it is just one of those things. Nothing I can say will make you feel better but thinking of you both.  Stay strong xx

Thanks Maggie. In the early hours of yesterday morning he was transferred to ward 3 at James Cook. Bizarrely that is the diabetes and contagious infections ward. However, the doctor we saw there (not cancer specialist) is probably the best one we’ve seen in terms of bedside manner (he lost his father last year and so was very empathetic). The plan is to try to build him up for discharge early next week, but with full care package in place. We already have some equipment at home from when he was discharged following discovery of the spinal fracture and we suspect he will be completely bed-ridden from now so probably won’t need any more equipment, just carers. They’re talking about him only having a matter of weeks now, and there was mention that 2 weeks might be realistic x x

Thank you, Karen. He seems to be over the confusion now. He was completely lucid yesterday afternoon and is back to making his usual terrible dad jokes, which is a good sign. That’s a bit of a relief because he seemed very agitated when he was confused - fidgeting, looking around, seeing things. It was pretty scary x

Thank you for your message Vicky; I really appreciate it as it must stir up difficult emotions. The support you’re providing to us all on here is incredible x x

Hi Jkee. I’m so sorry to hear this. This disease is so cruel - you get a little bit of positive news and then something else comes along to pull the rug out from under you. I hope the doctors are getting to the bottom of it and that they are able to address Simon’s symptoms. I hope you’re managing to take care of yourself too. Sending love and hugs to you x x