Bowel cancer CARERS, FAMILY & FRIENDS chat

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Hi everyone

I'm Steph from the Community team Slight smile

Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer.  The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.

Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis: 

Family and friends forum

Carers only forum

Supporting someone with incurable cancer forum

You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?

We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk 

  • To be honest I am not coping today as there is only me until Monday. It gets very lonely just like everybody else. Good to come here and let off steam xx

  • Bless you how are you today all the family have gone to the coast today for fresh air but I couldn't leave Simon never thought I would be jealous of my family having day out but sun is now out decided to shake it off and wash bedding clean windows and feel good for doing something rather than sitting around Simon just sat watching tv enjoy a bit of time to yourself nice soak in bath or doing something you want to do xx

  • Thanks Jkee. He is in agony with his fissure. I made tea last night and burnt it.  I hate cooking. Not sure what to do today.  

    hope everyone is holding up xx

  • Hello Ladies!

    Well, sounds like you have all had a week of it again and back on that rollercoaster. Maggie good to hear that they are actually going to do something with Les and you will hopefully get an operation of sorts. Jkee good you are getting things done about the house again and Helen hope things pick up a bit for Paul in the coming week. I had my little granddaughter again today for a few hours- she never stops! I had to go and have a lie down after she left. Unfortunately I have some sad news today also. William's partner Nicole's mum is more or less `on her way out` also. She has been in and out of hospital over the last couple of months too. At first they thought a lump in her stomach was cancer and then it wasn't but now it seems it was and it has just spread everywhere. William said the family are taking it in turns to be at the hospital. Nicole should have gone to work today but she has been at the hospital with her sisters all day and her brother William said was there for most of the night. There is a sister in Australia she just went there 18 months ago and she is getting a flight home tomorrow and hopefully getting in sometime on Monday. The doctors have said basically her kidneys are beginning to shut down so once that happens there is nothing they can do I think. William was saying she is riddled with bedsores and because her immune system is more or less zero she has nothing to fight with and the sores are becoming infected. She is drifting in and out of consciousness Nicole was telling William but very delerious. It is more or less the same as what Jay went through. I just can't believe this is happening again and thought it was all over although this time it doesn't affect me directly but in a sense does- my future in-laws. William was saying Nicole was going to go dress shopping today after work for their wedding but think that will be the least of her worries just now. Doctors are saying her mum may just have days left or maybe a week at a push. I think all they can hope for is miracles. Her dad William is saying is a bit in denial and trying to `play it down` and I get that I was that way with Jay trying to think it wasn't happening or it was happening to someone else. Hope you all have a better week next week. I will keep you all informed as to what it happening. Take Care everyone. 

    Vicky xx

  • Oh Vicky that is so sad that you too are going through this again with your son. My heart goes out to you xx

  • I know Maggie! I must have done something very wrong somewhere or I'm being tested. Think its just more or less now they keep Nicole's mum as comfortable as they can for as long as they can. Poor girl I can just imagine what her and her family are going through just now. William was supposed to be going to a stag do in Benidorm in a couple of weeks time one of his friends gets married next month but he thinks he won't be going now just wouldn't be appropriate and if he loses money through it so be it but don't think it will be much. He's sensible enough to know being here for Nicole is more important. It's going to be absolutely awful for William to have lost his dad and now maybe Nicole will lose her mum in the space of 10 months. Just have to pray that she is not suffering too much. Take Care. 

    Vicky xx

  • Distraught, not long until the 16th. It must be worrying indeed, I would feel the same. Sigh, back on the roller-coaster for you. Try not to stress yourself out too much, I've realised life just happens, somethings are outside of our control. I know it's easier said than done when you're in the thick of it.

    Tory, glad things are looking a bit more promising for your son. Fingers cross he'll get better and better each day. I dunno how you do it, it's sounds so exhausting for you. Make sure you look after yourself. 

    Jkee, shame you can't go to the coast with your family. You always put your husband first, I can tell you love him so much. It's good to keep yourself busy rather than just mopping about at home doing nothing. I need to start getting active too. 

    Oh PattyK, so sorry to hear about your sad news. Nicole must be devastated. It's what I went through as well with my dad, kidney's not functioning and in his case causing high potassium levels but it's cos of the cancer spreading all over the place. Yeah, I had that feeling too, like it wasn't really happening, I knew my dad was dying and had accepted it but it felt like it wasn't happening to me. I'm glad your son is there to support her, it's heart breaking to see a loved one die. 

    I've been lazying around at home, not ready to face reality. I need more time off work to get myself in a better mental state. I'm just binge watching old series of Death in Paradise, it's a murder mystery series filmed in the Caribbean, I just want to escape reality. Sending strength to Nicole and her family during this difficult time and sending strength to you as well, it must be harrowing to indirectly go through this again after what happened to Jay.

    Bug hugs to you lovely ladies. Deep down you are all so strong and resilient, even though you might feel like you're falling apart. Keep going, one step at a time x

  • Bless you fallingleaves!

    xx

  • Hi Vicky sorry to hear your news i am sure William will be a great support to her and he has been and still is going through it himself. It's seem all we hear is bad news the amount of people that tell me that people has passed away we could all do with some happy event. Sending hugs to you xx

  • Hi fallingleaves

    How are you doing? the best thing is to keep busy the next few weeks will seem a blur well done for taking time of for yourself if you feel like watching tv all day then do so whatever keeps you sane.Thankyou for taking time to come on here still at this difficult time we are still here for you xx