Bowel cancer CARERS, FAMILY & FRIENDS chat

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Hi everyone

I'm Steph from the Community team Slight smile

Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer.  The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.

Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis: 

Family and friends forum

Carers only forum

Supporting someone with incurable cancer forum

You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?

We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk 

  • Hi Angie8 Simon had it spread to pertioneal and many other areas strange even in Hospice he kept saying please let me have Chemo we only managed 1 on the new 3rd line Chemo you hang on to anything to keep them here every time we had a break from Chemo it just spread . When we were in hospice he said he felt more lumps and the Cancer had control over his body. I hope you keep fighting for your husband for treatment even if brutal to attack the Cancer and stop it getting control. Sending hugs to everyone x

  • Thank you jkee we will keep fighting he is staying positive just like Simon did and this break from chemo because of the cellulitis really worry’s me and the worst is we know it’s going to win in the end , we do try to make the best of every day .

    i am sure you will muster the strength to move forward and enjoy the wonderful memories you have of Simon eventually just be kind to yourself and don’t expect too much of yourself my thoughts are with you xx 

  • Hey Ladies. Ive followed your stories / posts now for 2 years. 
    My Dad has rectal cancer stage 4 with spread to liver. Ive asked you ladies questions before and youve replied and been really helpful. 
    Recently seen that Jkee’s Simon has passed and would like to say i am so so sorry for your loss Cry Xxx

  • Hello Angie8

    I do hope your husbands leg has improved enough to get back onto his chemo next week.  I know my husband really wants to continue his treatment.  All our lives have changed so much by this horrid disease.   Life is on hold and ruled by chemo, but hopefully it is slowing it down .   Take care of yourself as well .

  • 6 grandchildren It certainly changes lives. Les fingers crossed starts again on Tuesday if bloods etc okay. The small grandchild not well again so have not seen her due to his immune system. It is just a rollercoaster. I do hope you are looking after yourself too. 
    live to everyone xx

  • This is a constant worry with their immune being so low.  But it's heart breaking not seeing your little grandchildren as often as you would like.  They change every time you see them.   Basically I feel  the last 3yrs have flown by, living with this stress  from day to day & trying to protect our love one's.   Hope bloods go well for chemo Tuesday.   I feel my car is on auto,  driving to the hospital for my husbands chemo & picc care.   I expect  everyone feels the same.  

  • Les had a Hickman line but had that out and is now on 3rd different chemo. Dome days it does not feel real and others it really gets to me and anxiety and stress becomes worse. It usually gets worse when he starts chemo again and 4 tablets am and 4 pm. Then he is poorly. Then I know this is real. Yes everyone feels the same exhausting with worry stress and anxiety. I hate not seeing them as they are only around the corner but my other daughter lives in Australia. This is our life xx

  • Distraught

    That is so hard for you both,  so close to grandchildren,  but  its best, if they are not well,  they might be better next week.  Thats the last thing your husband needs as immune is so low.   This  is my husbands 3rd line of chemo as well.  He was told no more operations as both procedures followed by chemo completion,  it returns 3months later each time.   It's going to get him, but not without a fight.  It's draining for us, but horrid for them.   I am the worrying one,  he deals with it when he has to.  He doesn't want to know anything, that stresses me out,  as I need to know what we are facing .

    Keep  strong 

  • Thank you , I couldn’t agree more about our lives changing and being ruled by chemo you are completely right !! 
     And like you say the car is on auto to the hospital even though he hasn’t been able to have treatment we still have to go for PICC line flush . Our journey to hospital is roughly 40 mins drive I know some people have to travel further .

    Take care and all the best for treatment x

  • thankfully our car journey is about 10 mins but leave earlier to get parking.  We have free parking.  Well today we will find out if he has chemo and I am getting anxious.  
    i hope his leg has gone down more.  

    just a quick one lovevto all xxx