Hi everyone
I'm Steph from the Community team
Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer. The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.
Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis:
Supporting someone with incurable cancer forum
You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?
We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk
Yes that would be good Maggie. A wee glass of something or even a cuppa. Take Care.
Love Vicky x
Evening everyone the Pet Scan showed CANCER has spread 2 places abdominal wall soft tissue and small bowel fatty layer. Such a shock for once even I didn't know what to ask when I asked why it wasn't picked up because Simon has complained about this pain and lump in his tummy forever she said it's because it is not a organ . We are booked to have a operation into the tummy but first going to see the top man on the 29th where we can discuss and he will explain more. The call I had to make to my children I will never forget to say Cancer is back in 2 places they just broke down as a mum it broke my heart.Everything tonight does not seem real sat in silence feel sick Simon just says I will beat it not going anywhere broken hearted hugs to everyone xx
Oh Jkee, I'm so sorry to hear your news. Hopefully the operation will help remove the tumour. Not long till the 28th, fingers cross for you, hope the meeting goes well. All I can say is take a day at a time, cherish every moment and look after yourself. I know it's easier said than done. I've been on that roller-coaster with my dad, I hope Simon has a better outcome and more time!
I had to go back to work today after 6 weeks off work. Feels unreal my dad is no longer here. I'm off the roller-coaster, no more stress and anxiety but now it's been replaced by a great sense of loss and emptiness. Being off the roller-coaster is just as bad as being on it! I wish our loved ones didn't need to go through this cruel cancer journey in the first place!
Sorry I can't reply to everyone individually, I'm so exhausted. I did catch up on your messages, sounds like you're all having a tough time. You are all in my thoughts. Take care xxx
Oh Jkee!
So sorry to hear your news. I know how that feels for them to tell you the cancer is back and your head will be all over the place. Good at least they will be operating and it wont be long to wait. Hope you get more answers when you meet your top man on the 29th. Thinking of you and sending big hugs. Please try and stay strong and take special care.
Vicky xx
Jkee that is certainly unexpected. I can’t imagine how you must be feeling, one day at a time. I can’t believe the rollercoaster is still going string, just wish it would stop just for a while to give us all a breather and enjoy. My heart goes out to you and your family. If they are talking about an operation then that must be a good sign. I am sending you a really big hug . Sending my love maggie xx
Thankyou Vicky I feel like you if he managed Chemo would it have come back. Will see on the 29th went to sleep crying woke up crying upsetting people are distressed but you see them laughing having fun it then makes you realised this is just us very lonely xx
Thankyou Scarlet10 for your kind words last time we went in as a emergency and didn't have time to dwell on it this time was such a shock I am heartbroken but I am sure when the appointment starts I will have my armour on How are you and your family doing ?
Hi Maggie not sure of the plan 1 place is bad enough but 2 different places surly the body can only take soo much. My problem is Simon and I have been together 24 hours a day for 30 years and we love it my best friend so it feels a lonely place this time I have not recovered from before I know we are strong but gosh not super human love to you and Les for next week xx
we have two scans today, one ahead of a short course of radiotherapy to manage the pain from the primary rectal tumour and a heart ultrasound at a different hospital to make sure the blood clot on his lung hasn’t damaged the heart. I have that sick, worrying feeling you will all be familiar with. We have the second line chemo booked for 29th April but not sure if that will be put back due to the radio? That has to be done daily for five days and I don’t know if both can be done at the same time? Xx
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