Bowel cancer CARERS, FAMILY & FRIENDS chat

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Hi everyone

I'm Steph from the Community team Slight smile

Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer.  The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.

Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis: 

Family and friends forum

Carers only forum

Supporting someone with incurable cancer forum

You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?

We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk 

  • Thanks Vicky. Les has to go for an urgent scan in the morning. I am thinking the worst as it could be to do with the liver op expected on the 16 but they are leaving it a bit late to organise it. As usual I am in a state like all of you.  Not even sure when we will find out anything. 

    Prayers for all you and you are in my thoughts. The worst thing I had to for the consultant psychiatrist this week was to type up the 5 stages of mourning. I could not believe I was doing that but he has a client who cannot get over one of his parents. I really could not take all that in as well. I was on auto pilot when doing it. 

    Bless you all.  Helen I hope you are okay and Jkee keep us updated. Thank you Vicky for all your support xx

  • Hi Maggie big day for you tomorrow as well tomorrow I feel a sense of doom this time maybe because the pain Simon is in and his team are convinced the rheumatoid arthritis shouldn't effect the markers as much to me can only be one thing 5am start .Bless you all on here you really on in my prayers have been wondering how Helen is hope everything is ok hugs to everyone xx

  • Ours is an 8am start but Les needs the loo ever 5 mins so he will have to get up early to use the loo. I am usually up at 6 or before. That really is an early start for you both.  I will be thinking of you both tomorrow.

    take care everyone xx

  • Good luck for your appointments tomorrow. Fingers and toes crossed for you both! I hope you'll get some good news.

    PattyK, it's good to let it out. It's a lot for you to take in, so much is happening whilst you're still dealing with your own grief. 

    I'm too tired to type. I think I'm crashing, the shock and adrenaline is slowly wearing off. I just want to sleep and not think.

    You are all in my thoughts. It's tough. Sending you all strength and a big hug x

  • Thank you fallingleaves both Jkee and I are so grateful for all the support. Jkee will be setting off now but ours is only half an hour away.  You take each day as it comes and I am thinking if you too xx

  • My thoughts and prayers are with both of you lovely ladies today. I hope you get positive news, please take care of yourselves xxx

  • Fallingleaves88, please allow yourself time to rest. You’ve been through so much and now is the time to prioritise your physical and mental health. Thinking of you xx 

  • Good luck to both you and Jkee Maggie for today. I hope you can both bring back something positive out of your meetings. I will check in later find out how you got on. Take Care. 

    Vicky xx

  • Hope you get some positive news today ladies. The sun is shining and Paul’s grass is looking like a meadow with all the rain and I just can’t get going to start and cut it.

    Have had a horrendous week with discussions about Paul stopping all treatment, then the renal consultant came up with an idea to try and that has perked him up a bit. So Paul came out of hospital and I’m staying with him for a few days to see how things go. I feel totally drained mentally and physically and now have a sore throat so think I’ve picked something up from the hospital. Paul was in the hospice and hospital for six weeks so think it’s taken its toll on me. When will this ever end.

    Helen. 

  • Morning everyone well it's done what a night Simon on toilet all night he has to wee as well I've notice every few seconds oh well something new he has a stone so maybe that Anyway pet scan done as usual takes in his stride the mobile scanner had to be used the hospital one broke think i'm going to write a book he managed it even though claustrophobic phoned his team straight away who wanted to know when he had it done so they can chase apparently no communication between 2 hospitals now we wait. Helen we have been thinking about you the hospital is terrible for germs hope you are ok . You have had no time to even take a breath after loosing Kevin why life is like this for some of us guess he must think we are strong enough. Fallingleaves you will be exhausted but it is to be expected you will crash don't try and be brave just give in to your emotions.Scarlett10 lots of love sending your way the stress on my children is telling so difficult for everyone the sun is shinning here get outside listen to the birds and breathe . Love to Vicky for your support still and Maggie tiring day for you as well Les come on good news please right cup of tea needed xxx