Bowel cancer CARERS, FAMILY & FRIENDS chat

Hi Maggie I do understand how you feel my IBS is terrible at the moment hate the thought of Christmas again last year was hell would like it to just come and go which is not like me think Cancer took the enjoyment away last year and this year just makes me think what a year. Simon lost a close friend who had Cancer with him but it returned just makes me feel sick sitting with a time bomb. Maybe just grieving again for our magical Christmas we had when the children were little I think sorry moody me I am everyday grateful to have Simon here for however long but as you yourself feel my health is suffering love to you all xxx

Evening everyone , seems like we are all feeling a bit down in the build up to Xmas. This time last year for me everything was wonderful and we were looking forward to Xmas and a trip to Benidorm in the January. How things have changed for me since then, it’s been the worst year of my life. Our son Paul is I. The hospice now receiving help and I’m now running up and down there doing his washing etc and it’s a 50 mile round trip so working out expensive. Anyway at least he is safe and getting looked after. I have started taking some tablets to help me sleep and blood pressure tablets have now been doubled. Bought some horlicks today to try tonight before bed so hope it all helps.

Sorry to sound so miserable but it’s just how I feel at the mo and can’t be bothered putting tree up etc for Xmas.

Hope everyone else is feeling a little better

Helen x

Oh Helen what a year it has been.  That is exhausting for you doing a 50 mile trip. You must be beside yourself with Paul being so poorly. I am pleased you got some tablets to help. I have started taking magnesium citrate and they seem to working on my ectopics and anxiety as today only had a few. Have a read of them as they are really good for you. I have also started eating after last week as the ectopics were round about 4 every 30 seconds.  I was exhausted and a little frightened with it all.  Read up on magnesium citrate and see what you think. I really feel for you so sending a huge hug to help. Maggie xx

Hi Helen you are allowed to feel miserable I wish I could make things better I bet you are in a bubble right now you must feel exhausted you must be running on empty.Sending love to you and your family xx

Thanks ladies just taking it one day at a time at the mo, driving back and forwards and lots of washing!! At least he is still here!! I couldn’t bare it if anything happens to him.

Helen x

Helen you also need to look after yourself. I really feel for you going through so much this year and all the travelling you are doing. Just vent as much as you want as we are all here for you. Please take care. Lots of hugs Maggie xx

Hi Maggie how did Les get on with his appointment x

Hi Jkee.  Thank you for asking. He has to have scans before the consultant at the freeman will decide. They are reducing his chemo oxyplatin to a lower dose due to neuropathy and in case it affects his nerves as he would have to stop it altogether. I feel down today as he has gone back to bed and it is too cold to even open the back door.  How are you coping xx

Afternoon Ladies!

Well, how has your week been? Just dropped my sister back home and am just `chillin` if that's the appropriate word in this weather at home on my own again. All her appointments are `done and dusted` for a little while. Her appointment with the surgeon on Monday went well and they are happy with her everything is healing well and everything is clear. She got her covid/flu vaccination on Wednesday and yesterday (Thursday) we went to another hospital to have the polyp in her cervix removed which they successfully did. That was a bit uncomfortable for her but they got there with it. It will be sent away to get tested but they are 99.9% sure it is nothing of concern so can't get any better than that. Just the dog to get done now. I have to take him tomorrow for his 6 monthly grooming at the dog parlour to get all smartened up for Santa coming. Keeps me going and busy but as much as I am, still have that `empty feeling` going on and  thinking about bereavement counselling now. Can't believe it's Decemeber and Christmas is now only days away. Will make some effort for that. Maggie and Jkee hope Simon and Les are are doing as well as expected and Helen hope you are bearing up well too. Have a good weekend ladies. On we `plod`. Take Care.

Vicky xx

Hi Maggie bad week this week could write a book lol Simon has neuropathy in his hand even after the onw chemo this morning bless him went to get milk dropped 4 pints on my new rug in kitchen he was upset he says feels like the hands don't belong to him and massive not sure what that means but will have to wait until our yearly check up to talk about it. He also just out of the blue said feels this lump on my shoulder straight away face dropped to the floor heart stop but I couldn't feel it told him right we are going to ring your team or doctor he said I am not spoiling the kids and grandkids Christmas again they said I've had it few years not sure what to believe.Waiting to see a colorectal surgeon myself for these piles no creams or suppositories work went in July rang to chase they said 9 month waiting list ridiculous.Oh and a husky dog off lead came at me and the puppy last night no one with it but luckily I screamed at it and someone helped frightened us both lost a friend and my auntie this week think that's it quiet week apart from that still thanking God every day for Simon however long so I shouldn't complain. On a positive note large tree is up and apart when the puppy is bored or trying to get my attention is staying away I am coping I think love to you xx