Bowel cancer CARERS, FAMILY & FRIENDS chat

Jkee I am passed myself I think it is the unknown.  His friend came today and could not believe how much weight he has lost, I suppose being with him 24/7 I don’t notice as much as everyone else. Yet again another rollercoaster and tummy doing somersaults but thank you. Positive thoughts for everyone xx

Hi Maggie!

Hope everything goes well for you today re Les's appointment. My sister's covid/flu jab appointment got cancelled at the last minute don't know why got a phone call yesterday morning from the vaccination team to say they need to reshedule so it's been put back to the 29th November. Going to busy that week. She see her surgeon on the 27th and then goes to have this `rogue polyp` removed on the 30th. I could have told her just to go home again but would feel rotten if I did that. Just having a bit of a `flat week` again and not want to do much of anything and it's sort of good she's here because she makes me endless cups of tea if I just feel I can't be bothered moving she's a proper `tea Jenny`. Got our hair cut the other day so that has sort of made me feel a bit better. My hair is a bit shorter than normal but I like it. I would usually have Jay at my back shouting `it's too short`! but I suppose I can have it now the way I like now. Take Care Ladies! and All The Best for today Maggie

Vicky xx

Wonder why the vaccinations were cancelled. We have loads of places here where you can get it done for free and no waiting. We are sat waiting until 3.  He starts chemo again on Tuesday which will be his 12 session.  He looks pale and gaunt now but still wants to continue.  I so admire him. Popped out this morning with daughter for some shopping which made a nice change.  Will let you all know what they say xx

Well the surgeon rang very late as he was busy. He wants to see the first scan from February to compare and take to next meeting. He is contacting the oncologist to send them over. Another waiting game and rollercoaster.

take care everyone lots of hugs Maggie xx

Hi all, it seems ages since we all last spoke. How are you all coping. I am taking each day as it comes.  Would love to go Christmas shopping but have done it online instead and had them delivered.  I found studio a really good place for bargains. I got 3 dressing gowns at £10 each with the children’s name on and a few other things.  I also got Les some new trousers that fit from marks and Spencer’s so he does not have them round his ankles anymore. I had to get these online as they don’t stock his size in the store.  He is nearly the size when I first met him many moons ago apart from the loose skin. 

I hope you are all coping not too bad.  I am dreading Christmas but daughter said we will just muddle along and then Les won’t feel left out and I won’t if we keep it the same. As she said it is for the young ones.  They opt in but ho their other nanas as their cousins will be there but we usually go to theirs after 5 but doubt we will be going this year. I just can’t believe how quick this year has gone. 

hugs to all Maggie xx

I had my flu and covid refresher cancelled when I told them  I was having chemo that week . Luckily I took the initiative and visited the jab team in the week in between before they realised I was on chemo and me and V had it done after a 15 minute's wait. 

I would think that this might be the reason for cancellation as the jab team said it was best to have them in between sessions. 

Hope this helps

I will let Les know as he was not sure if he could have it or not but will probably wait fil he sees the oncologist on the 30 of this month.  

Yes all passed off without any real side effects of either the flu or Covid jabs. Was over the moon after the short notice of getting it done. Always had a morbid fear of needles ( even fainted after giving a poor nurse a fright just before one of my scans but that’s another story). Mind you the little scratch was a bit more than that and I all of a sudden felt a bit queer. I was only getting the canalon in at that point. However after having told the nice young nurse that I felt a bit queer the next thing I knew was wakening up to 3 doctors and 5 medical staff all around me still sitting upright in my chair and one doctor with his fingers on my neck. My partner (V)  was sitting in a waiting area when the alarm went off and she said she had hoped that the “alarm” patient was ok after doctors and nurses bolted out of doors all round the place and hurried down the corridor. She never thought it could be this brave soldier fainting with a canalon. 
Mind you my GP  nurse is excellent at taking bloods every 3 weeks and he is slowly getting me on board with needles. 
Also forgot to say that after my sizeable surgery operation I had to inject myself for 28 days after being released home from hospital. Now that was “traumatic but I hope that my tip for the future to anybody who doesn’t like needles and needs to self inject works. 
1 Remember if you don’t do it you’re probably going to get more needles more often. 
2. To mask the needle “scratch” ouch the bit where you’re going to put the needle in till it mildly hurts, Then put the needle in positively in one motion. 
3. Watch the prevention medicine going in and feel the good you are doing. 
4. Promise yourself that you’re going to do it religiously at a certain time - I chose 18:00 hours and V who couldn’t do it for me - helped with a smile after each success. 
5. Give the injection area a light rub ( to mask the discomfort of putting that great big needle into your thigh)

6. Take opposite leg each time to make you concentrate on the process. It’s more difficult than you think)

6. Lastly be ever so proud you’re not the coward you thought you were. 

Hope it helps somebody 

Take care 

Bowel67 ( should really be Bowel-67%)  

2. Above should reach “pinch” and not “ouch”. Seems the predictive text knows better than me 

Do my PE injection myself and never ever did I imagine I would!!!  But the thought of a very busy district nurse having to visit every day spurred me on to just get on with it!!! No I don't like it but I can do it!!!! 

Also I arrived for my chemo yesterday to discover I had been bumped!! Someone else was in my chair, Tuesday 10 am, chair by window!! Apparently they were overbooked and now my treatment is in 9 d time!! Is it awful of me to feel rejected and want to know who decided I should be the one to turn round and go home?