Hi everyone
I'm Steph from the Community team
Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer. The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.
Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis:
Supporting someone with incurable cancer forum
You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?
We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk
Hi all. Can’t say much at the moment as I am absolutely distraught. I really hope Jkee and all are coping in this situation. My head has gone in the garage and I need to bring it out and put on my big girls pants but they keep falling down like me.
my heart goes to all and sending hugs and hugs to all. Xxx
Bless you Maggie! Like Jkee and Helen my heart goes out to you. Just keep your head in the garage for now if it feels better and maybe in a while the big girl pants will will stay up. Take Care. Sending you huge hugs and strength.
Vicky xx
Hi Distraught
Just catching up ! Did they say what size the lung nodules were ?
Given he is scanning regularly they are possibly watching them very closely. Sometimes they are just mm. It took two years for my mum's to grow to 7-8 mm . They just watched them until they felt it was time to act . My mum knew nothing of them . They were very different to her liver mets that grew like wildfire .
It knocks you for six but to be honest my mum’s have not caused her many issues and they have been around since 2016 in one form or another . Her liver ones were fast and needed quicker intervention.
It does feel like one blow after another at this stage but it only takes a period of stability to gain some strength .
I do hope your husband has had some help . That’s awful not being able to eat and being in such pain .
Thinking of you all .
Court
Helpline Number 0808 808 0000
Thank you so much court and Vicky. They did not say how big they were. At the moment he is having a terrible time, up and down all night, going to the, can’t go. I have been awake and listening. He won’t take the morphine as that bungs him up. She did say it could be the tumour that is causing the pain. She was not in the best of moods when we saw her and as I said I think it was because the liver surgeon had not wrote to her. He has wrote to the bowel surgeon here. He is 3 weeks pot op today and I think he is doing marvellous but looks dreadful. He has been walking to get his strength up. He can’t drive or lift anything heavy yet. I suppose we are in the lap of the gods.
helen i was thinking of you on Monday xx
jkee fingers crossed for Friday xx
Everyone else my thoughts are with you. Xxx
I think that’s still very early stages of recovery . The liver surgeon warned us depending on how much is removed to expect a longer recovery . It was a good six weeks before she started making more progress but a good six months to be completely back to normal . Mum had a lot of pain .
A day at a time but morphine did the same to mum . Not easy is it . They just can’t get comfortable but it does sound all things considered he handled surgery very well .
Hold onto that .
He is making his way forward . Totally unacceptable to be in a bad mood . Think what it’s like to be the patient . Honestly that’s awful for you both when you needed a bit of encouragement.
take care ,
Court
Helpline Number 0808 808 0000
I think he is doing marvellous I just pray and hope they will do the bowel surgery as that stopped responding to chemo at Christmas and is getting bigger. I am just anxious all the time and like everyone else time has stood still and it is a lonely place for us all. I read what you put about your mum and that gives hope. I just pray for all of us who have lost and still have loved ones xx
Bless you Maggie it's a lonely place isn't it everyday people just text and say how are you now I just put same what more can we say I am living on cheese sandwich not sure I could stomach anything else I feel for you my head and stomach is a mess can't even be bothered to do anything what's the point . Simon still in pain and on water spoke to surgeon yesterday long as he can take fluids he was ok about it . FRIDAY we will know save his life or send him back to me nothing they can do his cancer is very rare course it is . The dog is doing my head in he knows his master is ill I think was even howling last night got back to puppy stage god know how I will cope he is still jumping up stage can't walk him much now I pray for you Maggie hope he is listening I pray every day for everyone suffering xx
I felt same Maggie when we saw surgeon and colorectal nurse felt information was given matter of fact you only have months then they were talking to each other in front of us about sun tan comparing and where they are going next as if we were not in the room . THINK I expected holding OF hands soo sorry and tissues Felt like just a number to them x
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