Bowel cancer CARERS, FAMILY & FRIENDS chat

We're all hoping to someday get off that `rollercoaster` jusr when you think you are, something else happens and you're back on it. Hugs and Best Wishes to you all. 

Vicky xx

We will see. He sees the oncologist in the morning.  He is not that good today. One day at a time.

higs and love to everyone xx

Hi everyone not good here Simon is unable to eat now where one of the Cancer is small intestine food give him great pain when trying to go through the Cancer. We were awake all night tried a sandwich left him in agony and direahea ordered some complan today we need to get to Friday to give him a chance can't believe I am writing this stuck indoor watching him in pain and disappearing why oh why was this not done 3 weeks ago feel alone and scared we are in isolation now to make sure no one comes with germs need God to keep this wonderful young caring man on this earth . I HOPE les is still doing well love to all of you xxx

Im so sorry you are both going through such a horrendous time. Words are inadequate but you are in my thoughts and I’ve got hope that this well get better. Take care xx

You are doing the best you can in horrible circumstances, it’s agony just waiting and I truly feel for you both.

i have Paul’s cremation on Monday to get through and councelling on Tuesday. When will this all end.

Hope everyone is baring up as well as they can

Helen x

Jkee so sorry to hear this dreadful news. I can’t believe they have left him this long.  Not that good news here as well as the oncologist was not best pleased she had not heard from the freeman instead told him he has two small areas on his lungs, one which is growing.  Then just said we will discuss in the mdt next Thursday what they will do, either chemo or what. She also said the tumour can cause him pain when we were told it was definitely the fissure and asked if he had seen the surgical team here. Of course we haven’t as she is the one that is supposed to organise things. My greatest friend is coming from Australia at the end of the month knowing I am stressed mentally and physically.  Jkee I know what you mean being lonely. Les has not been that good at all.  Now I am like you Jkee worried sick. You are amazing and you will get to Friday. Can you not ring the MacMillan team for more advice on pain management. I am thinking of you.

scarlett I hope you are coping. 

helen you can do this as I know with help from the counsellor you will get through this awful painful time.

hugs and kisses to all xxxx

Sorry Helen to read this how the heck do you get out of bed each day and carry on I have not eaten no appetite watched my brother die of cancer it is just the same cruel evil way to die you are amazing I am nothing without Simon will be thinking of you MONDAY XXX

Hi Everyone!

So sorry to read what you are all going through. Jkee I can just imagine what you are going through just now and it is horrible. I had this with Jay I would make him something to eat but in the end he didn't want it and it really hurts to see them just wasting away like that especially Jay he was a proper `foodie`.  My heart goes out to you it really does. I am saying prayers for you and everyone else here and praying is all you end up doing. Bless you all. Helen I hope everything went as expected with Paul's funeral today and he got a good send off as Jkee says how do you get out of bed with all this going on. The answer to that is I suppose that we just do- we have to just try even though we may not want to.  Maggie sorry to hear about Les and they have discovered more growths. I can't believe medical teams can be so lax in these circumstances with not getting things done ASAP. I was the same with Jay and always wondering why things in his situation weren't happening `yesterday`. 

I am just counting down the weeks now until Jay's anniversary in passing. I'm ok for now but I think as the time draws nearer I will feel it more. Everything is back to normal I think now for William and Nicole after her mum's passing but then I don't know like myself if things will be normal again for her. I haven't heard from them over the last week so guessing everything is ok. Sending you all love and strength. Take Care. 

Vicky xx

Im not very good with words and get so angry that so many people are suffering with this disgusting disease. I am thinking of you all and hope you are doing as good as you possibly can in the circumstances. I second why some medical teams don’t show more urgency. Maybe it’s lack of resources or they are so used to dealing with such situations that they forget how terrifying it is for the patient and loved ones. I also struggle to comprehend how no cure has been discovered. It needs to be done ASAP 

Hi Scarlett!

Yeah they keep telling your they are `working towards a cure` but just wonder it they will ever actually get there. I can't watch cancer adverts on TV now the Cancer Research ones tell you how much they are doing to find a cure but have been doing this for years and every so often they come up with new solutions seemingly for bowel/breast/ pancreatic cancers and the rest but you never seem to hear if these `solutions` have worked. Just wonder if they ever will get a cure for this horrible disease. 

Vicky x