Bowel cancer CARERS, FAMILY & FRIENDS chat

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Hi everyone

I'm Steph from the Community team Slight smile

Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer.  The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.

Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis: 

Family and friends forum

Carers only forum

Supporting someone with incurable cancer forum

You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?

We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk 

  • Oh fallingleaves so sad. I am pleased you have a good manager. I am really not good with words but thinking of you xx

  • Hi Fallingleaves!

    So good you have an understanding manager. All the prep and paperwork to be done before the funeral will keep you occupied in some way. Yes you will feel you are in a bubble as you say I think it will be the adrenaline taking over and once everything is sorted then you will feel it. Oh my sincere condolences to you and your family again. God Bless you all. 

    Vicky xx

  • Well Les got a phone call yesterday to delay his chemo as he might only might be getting the liver op on the 16. Neither of us have slept, probably the anxiety on waiting now for a date. If mr Hammond has his team together on the 16 then it could go ahead. I am now on another rollercoaster. 

    I hope everyone is keeping their chins up and I am thinking of you all.  Hugs Maggie xx

  • So another waiting game for you and Les.on the bright side they must think he is strong enough and well worth doing this operation so try and think positive thoughts.

    had a terrible week with Paul and hoped to get him back to the hospice yesterday but no at least another week in hospital. Had talk with various doctors about stopping meds and how long it would take etc, spent all day yesterday at the hospital and think they seem to have a bit of a plan for him so hope it improves his life as he has no quality of life at present. So let me join you in the rollercoaster- day off from that hospital but I have to go to the rvi today for my eyes- you couldn’t make it up!

    Helen x

  • Good Les has a date now to move forward yes it will be scary for both of you but hopefully a brighter future after the operation sending big hugs Helen so hope things improve for you and your family you deserve some luck hugs to you xx

  • Hi Jkee and Helen. We all deserve some luck. He passed the fitness test for the anaesthetic and it could or might be the 16. We will wait and see. helen can’t believe you are going to the rvi, Les mum was a telephonist there after leaving the police.  Been there many times when his dad was in and the freeman. I am praying for you all that some good news will come soon.  My heart I can feel pounding in the middle of my tummy and nothing seems to calm it down at all. I am so worried so goodness knows how Les must be. They will be talking his gallbladder out as well and Matt said it could take 9 hours, I could run away and not come back.  Daughter gone to Scotland with the girls and mother in law and I feel a bit envious as I would love a long weekend away but I won’t leave him just in case. 

    this rollercoaster just keeps going round and round and never seems to stop. Helen and Jkee and everyone else try to look after yourselves xx

  • I will runaway with you 

    Helen x

  • Don't forget me!

  • I would not forget any of you but because we love them I think I will stay and be a hermit xx

  • Of course you will stay just feels good saying it I often say could just run in a open field and just keep running love to you all xx