Bowel cancer CARERS, FAMILY & FRIENDS chat

I am pleased you enjoyed the ballet which would have been a nice break from everything.  I am not sure what to say under the circumstances you are coping with. There are no words that would make you feel better. I will send you a lovely hug to keep you going xx

Yes there’s nothing anyone can say or do at the minute just taking it as it comes. Making a trifle as it’s one of Paul’s favourites and if it gives him a little pleasure that will do for me. Just given him a handful of his tablet and laxative drinks and he is in bed, just think if can sleep maybe the pain isn’t too bad. all the tablets he is on it’s so difficult to give the right pain relief - can’t have morphine and he has got used to the palladone and even fentanyl not helping so nothing even taking off the edge now. Wish he could be sedated and not be in this situation so maybe time for a conversation with the hospice.

Sorry to spoil your Sunday morning with my depressing post

Helen x

Helen I really hope you get the answers you need gosh my heart breaks for you and your family and for Paul to be out of pain sending you hugs xx

Hi all. I’ve finally caught up on messages. What a rollercoaster everyone has been going through.

Helen - I’m so sorry to hear how much pain Paul is in. How is he feeling today?

Jkee - how is Simon’s pain today? Has he slept any better the past couple of nights? Hope everything goes okay tomorrow.

Fallingleaves - I’m very sorry to hear the news about your father. Hope he’s not in too much discomfort and that you’re managing to spend some time with him.

Vicky - hope you’re doing okay. Is the diazepam helping at all?

Maggie - I’m glad to hear that Les has been given the green light for his bowel op. Have they indicated whether they think they’ll be able to do keyhole? They took out my dad’s gallbladder as well when he had his done. If possible, it would be good if you can have someone up there with you for the day of the op to try to keep you occupied and to make sure you get settled and know where everything is if you’re going to be staying up there for a while. And don’t be alarmed if the op takes longer than you are expecting. My dad was under for almost 9 hours. My mum found the coffee morning at James Cook quite helpful. I know it must be difficult for you to get away, but it’s important to look after yourself as well. In the long run, that will help you to be there for Les too. So if there is anything you think would help you, I would encourage you to try it. But I know it’s all very easy for me to say but much harder for you to do.

Finally, I just wanted to echo the messages of thanks to everyone for their support and to say how in awe I am of how everyone is coping with such awful circumstances.

Love to you all.

Matt x x

Hi Matt good to hear from you how are you all doing glad your Mum went along to the coffee morning you will find anyone that is going through Cancer or been through this journey will be of great comfort we are all here . Today the sun came out and we managed  a tiny walk but my goodness it was good just to feel that sun my thoughts are as always with you all you are all in my prayers xx

Helen this must be toughest yet for you. I really hope they get his pain under control.   I certainly woukd ring the hospice for advice as no one should in that much pain. There must be something else if he cannot take morphine. I am thinking of you always. Huge hugs xx

HI Jkee!

Jus on to say good luck for tomorrow with Simon. I'm sending some positive vibes to you and hugh hugs. Take Care. 

Vicky xx

Matt  I know the freeman quite well as his mum and dad lived in Newcastle. I am hoping a friend will come with me and stay. I could not bear to be too far away. They are doing the liver first but now waiting for a date and he is anxious about not having a date. I am dreading it. How long was your dad in for and what do you think of mr Hammond. I would love to go and chat at a coffee morning but we are not at James cook and as I said I hate driving. Also how long did your dad wait for the operation.  I hope he is settled and sending hugs xx

Jkee that was good getting out for a bit. We actually had company so could not go out and then my brother turned up and by then it was too cold for Les. I hope Simon is doing okay and mot in too much pain. Hugs to you xx

Glad you made it out today to enjoy the sunshine. Hopefully as we head into spring, and as the clocks change in a couple of weeks’ time, there will be a bit more sunshine to enjoy. I always find Jan and Feb quite depressing, and my spirits start to lift a bit as the nights start to draw out.

Things are a bit up and down, as they are for everyone, but at the moment not too bad. I‘m trying to ensure that we always have something to look forward to. Dad and I have booked to go and drive some classic cars in the Peak District next weekend, so that’s something positive to focus on x