Bowel cancer spread

Hi Hblight 

I am so sorry to hear about your dad . I remember you posting earlier in the year .

Have they done a brain scan ? Thankfully bowel cancer spreading to the brain is quite rare . However they like to check any potential neurological symptoms . My mum just had a brain scan to rule them out as she was hallucinating due to her electrolytes being knocked off .

I would definitely speak to his GP about getting an oncologist back involved .

My mum has a current spread to her lung which she is having just a targeted treatment for . She is managing ok on it . Always ups and downs .

I hope he gets thoroughly investigated very soon .

Take care ,

Court 

Thank you for your reply, his scan is booked for the 15th.

We really struggle with the GP, when he was falling and then lost the use of one of his legs the GP refused to go and see him. I managed to speak with their GP and the GP was very arrogant asking me what I wanted him to do. I said possibly a MRI as I was concerned the cancer could have spread to his spine. The GP refused and just said if he can’t walk in a couple of day call an ambulance which my parents ended up doing as they didn’t know where else to turn. 
I am trying to stay positive but it has spread so quickly.

I will try the GP again thank you

Sorry to hear that Hblight. My husband is going through advanced cancer at the moment and just before Christmas last year he was admitted to hospital with low kidney function and dehydration. Since then he has been in and out of hospital with a few sepsis infections. One of his legs is weaker than the other and at one time did a CT scan on his brain because of that but luckily that scan turned out to be clear. He had a fall the last time he came home from hospital and that set him back slightly and refused to get out of bed after that it really knocked his confidence whereas before, he was progressing well with his physiotherapy. I am just hoping when he comes out of hospital this time he will hopefully, but not immediately, be able to get back on his feet at some point. 

Pattyk this sounds similar to my dad. After being discharged from hospital he did amazing back on his feet he even drove his car.

After a few falls like your husband knocked his confidence and he became really depressed. MRI scans showed lumber spine fractures but the Drs can not understand why he can’t even stand now, the fractures aren’t the cause. 
It’s so hard to see him so frail going from a pretty active man to how he is now. 
I really hope your husband gets the support to get back on his feet when he leaves hospital. Sending a hug x

Oh my Hblight . I think that’s awful !

You might like to speak to our helpline staff to see how to go forward . That’s a very difficult situation.

Any neurological symptoms must be investigated. I would definitely use A and E in a situation like that .

Take care ,

Court 

He did and that’s how we found out. The paramedic assessor booked him into the frailty unit at the hospital and that’s how we found all the fractures, the secondary on the liver etc. 

x x

My mum is dealing with multiple spinal fractures . She is fracturing all over the place , pelvis, sternum and ribs . One heals and another comes . Just gone onto bone strengtheners . Very hard to see them in pain 

So strange though for your dad that his mobility is suddenly impacted . Hope he gets the right investigation. He deserves  it .

Court 

Thank you Highblight much appreciated. 

Yes you're right it is so hard to see them so frail. My husband was a `big bear of a man` who loved his food and now he just looks so scrawny and has the appetite of a sparrow. It's just so hard to see him as he is now and not as I have always known him. His mental health has suffered too but I don't know if that's the sepsis or cancer or a bit of both. He is `still in there though` because now and again I get little flashes of the old him and the banter surfaces again. So sad he just did not ask for this in his retirement. Take Care.

Vicky xx

Hi Hblight

So sorry that you’re going through this. It’s such a worry.
If you click on Courts name you can read her back story with her Mum. It’s remarkable 

I find the arrogance of your GP unacceptable. It’s really not on. 
Complain 

I am sending you a hug 

I did try to make a complaint but unsurprisingly I can’t it has to be my dad, who is not up to doing much at the moment. He is trying to process everything like the rest of us. Like you say I really do want to put a complaint in, he was very arrogant. Everything I suggested, he knew best. I asked for lying and standing blood pressure’s just incase it was a simple cause like postural hypotension, his response was well he has had a blood pressure done, I pointed out not a lying and standing one, he replied even if he did have it there is nothing to treat it unless he gets referred to a cardiologist, which I know is a load of baloney.

After my call to him he rung my dad and asked “ what does your daughter want me to do”