I think that we need to change the conversation and language around Terminal/End stage cancer, After all none of us are getting out of this life alive. Surely we should be celebrating the achievements that someone has lived their life well, Yes its sad that they have passed and Yes its horrid that they had cancer but I don't think that should be the defining memory of someone. If they lived their life well then surely they never lose the battle.
Yesterday my friend Eve passed away from incurable Goblet Cell Cancer. Today her page is full of post saying she lost her battle, but this is how I choose to see the passing of my friend.
She did not loose her battle she won, and I believe this because when she was diagnosed with this horrid incurable form of cancer, she was told that she had between 6-12 months to live, she lived on for a further 2 and a half years. Just before Christmas last year she was told she would be lucky to see Christmas, she did get to celebrate Christmas with her family and carried on living for a further 6 months.
Oh boy did she live, she raised over £50,000 for Cancer Research UK through so many different events that she organised, she won several awards for her fund raising. She travelled and spent time with her family & friends and did all the things that made her happy, all the time with a smile on her face, even when things got tough for her.
When I was first diagnosed, Eve and I met in Starbucks and talked about what had happened to both of us, I’ll never forget the looks on peoples faces around us as we talked very openly about this horrid disease that was affecting us both.
She told me I had one of 2 options; I could let this disease stop me from living my life and slowly let it eat me from the inside out or I could choose to make the most of every opportunity that came my way and live whatever life I have remaining the best way possible. She was also keen to point out that I could be hit by a bus tomorrow, so I’d better make the most of today. I think you all probably know which option I chose.
She told me all about the Chemo (CAPOX) I was going to have and told me I had to send her pictures when I had my hand spasm, as when it happened to her, she looked like he had T-Rex hands. Over the further 18 months she continued her battle but was always there to support me and help me through the days that weren’t so good, and I needed someone to talk to that had a shared experience.
Many times, she kicked me in the arse and stopped me feeling sorry for myself or over thinking things, normally by making a joke or just being brutally blunt about it but I loved her for that.
Yes, my friend has passed, I’ve cried and I’m sad but because I will not have her to talk to, but she will continue to kick me in the arse on those darker days. Her kindness, determination, love for life & spirit will very much live on in all the people that she has helped and touched in her life, and I consider myself lucky that I got to call her my friend. I will always have a special place for her in my heart.
Therefore, I believe Eve did not lose she very much won the battle as she did it her way and to her timeline. I think everyone could benefit for being a little more Eve #BeMoreEve
Hi Wen Qualto
What a lovely post remembering your friend. Eve sounds a good friend and I am sorry she has passed. I am part of the incurable group on this forum and we all prefer to say we are incurable but treatable. I think, in my mind anyway, terminal should only be used when active treatment is stopped and there's no more can be done. As for - lost the battle, this aggravates me and I blame the media for introducing it. Why is it only used for cancer patients? They don't use it for any other long term conditions but those people don't win the 'battle' either. We can live more healthily, exercise, take supplements and minimise stress but really, cancer will do what it wants to do, despite our best efforts. Therefore, I believe that it's not a fight or battle at all. I can just imagine those faces in the coffee shop, I hope they were enlightened by your conversation. Look after yourself, your friend sounds like she was a good person. Take care,
A x
Hi Wen Qualto
What a wonderful post. Enjoy celebrating her life and all the magical times you so luckily shared with her
Hi A,
Thank you for the response Eve was very special indeed and I will miss her. I think you are right with the comments and I personally don't see it as a battle. Since I removed the aggressive terminology I've found an inner peace with my situation, I'm classed as difficult to cure but treatable at the moment and on my last scan i had no visible signs of cancer, long may it last.
Hopefully the more people that voice there aggravation with the "loosing the battle" the sooner it will change and we can just celebrate a life well lived.
Hi Wen Qualto
I have just stumbled across an article about your friend Eve on the Cancer Research UK social media page. What a remarkable lady! So inspiring and so selfless. You must be proud to call her a friend. A "life lived well" indeed.
Long may her memory help you to stay the forward looking positive person that you appear to be. It's great to see you carrying her baton of hope and passing it on to others in this forum.
Every best wish for the future.
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