One year colonoscopy

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I had a right hemicolectomy in Dec 2021. T3N0M0. My one year scan in Jan this year was clear. I was supposed to have my one year colonoscopy in Jan also, but I am still waiting, due to the backlog caused by COVID. I have spoken to my hospital nurse but she said it could be months.  I am really anxious as I want the reassurance that all is well.  I told the nurse I have some issues with constipation and stomach aches but she wasn't concerned.  I wondered if anyone else has suffered this delay?  Maybe I should consider going private?

  • Hi Drama. Personally I’d be happy with a scan?  The NICE guidelines recommend follow ups of CEA and CT scans for 3 years. I seem to remember that I had quarterly CEA tests and annual scans - I didn’t have a colonoscopy until just before my 5 year sign off. If you’re concerned about the symptoms then perhaps give your doctor a ring - it may be down to anxiety?

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi Drama

    I had LAR Aug 21 and I haven’t had a colonoscopy.

    I have been recalled after a CT scan and had lung cancer surgery in March. So I am relieved that the CT picked that up. The lung cancer was a primary

    Ann
     ‍Art

  • Thank you for replying. It's just that my consultant said that I would have a colonoscopy at one year and scans every year for 5 years along with blood tests every 6 months. I have a blood test due next month.  I keep telling myself that the scan would have shown the colon. You are right in that it could be anxiety.

  • Thank you for replying. I'll try not to worry after hearing other people's experience. I'm sorry to hear of your further treatment. I wish you well for the future.

  • Hi Drama 

    Thanks for the well wishes I’m fine   The CT saved my life and colonoscopy wouldn’t have shown two tiny nodules. I’ve had a segment top right and the whole of lower right lobe removed.  I also had a PET Scan to check there was no spread before they operated 

    The NHS are struggling however they still manage to pull it out of the bag even though the time scale is much longer 

    I’ve decided that I’m not going to have a colonoscopy if they send me an appointment. I’ve been pulled around enough   I need a break and some sun 

    Ann
     ‍Art

  • You've certainly earned a holiday,! I'm planning a holiday to see my daughter in Australia in September, which is why I'm anxious to know I'm clear. I've also got friends to catch up with there as I lived in Perth for 13 years until coming back to UK 11 years ago. Still trying to decide if it was a mistake !

  • Australia is a beautiful country. We spent time in Perth then we travelled east coast in a camper-van for six weeks  A holiday of a life time My daughter worked there and we gave her a surprise visit 

    Have a lovely time planning your trip 

    best wishes 

    Ann
     ‍Art