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Bowel cancer carers, family and friends chat

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Hi all, thank you for accepting me. My husband has been diagnosed with stage 4 bowel cancer. At present I am not accepting it, it makes me feel sick, panicky, shaky etc. it was a complete shock.  Anybody else in the same situation.  Many thanks

  • Morning All!  

    Yes it is an absolute rollercoaster, isn't it? jay been on the phone the morning he thinks they may be letting him home the middle of this week coming. I asked him if the got rid of the infection and typical male he doesn't know. Going up later today to see him. They have said this before about discharging him and then they change it but in this instance if they are not going to do much more with him and the infection is gone, I see them just letting him home. Just coming home to lie in bed again no doubt but I may have to just resign to the fact that that is how it is going to be. At least- and no disrespect to you Helen- he is still here- for now so I suppose that is a bonus in itself. He is back where he was last time told me he was on the 12th floor but don't think there is a 12th floor and found out he is on floor 11. Will see him later today. Take Care everyone.

    Vicky x

  • So, Been up to see Jay. He is looking a whole lot better and a better colour about him too. Got home and he phoned. Good news he said. All his numbers are spot on again and he had an oxygen tube attached to his nose and they have taken that off as his oxygen levels have stabalised too. Doctor said he is 200% better than what he was when admitted on Thursday so Wednesday is starting to look more like a definite for him getting home unless they decide different before the. So looks as though he's dodged a bullet once again. Being cautiously optimistic again as I don't want to get too complacent again. Got wee granddaughter staying tonight they are all at a baby shower today so some of the mum's and dad's are going to the pub later and as our son and his partner are both on late shifts tomorrow have decided to join them and so granny is babysitting tonight. A wee piece of good news for a change.

    Vicky x

  • Evening Vicky that is good news let's home he can stay well this time at home with you enjoy your evening with your Granddaughter.Went puppy training class with my daughter today hated it our puppy was going for all the big dogs who ere all well behave then decided to poo in middle of course I was sweating all the other dogs were brill I have to keep going but it was a work out heis asllep now which is worrying bit early let's see what the night brings hugs to everyone x

  • Good news indeed Vicky - it’s amazing how they pick up in hospital so he should be back home soon. Enjoy looking after your granddaughter tonight lots of cuddles!!

    Had Paul and kids for Sunday dinner - first time I e made one in ages and baked a pie and a cake too. Sally called up for a cuppa and piece of cake, she goes back to work tomorrow so she has written an itinerary for me for the week to keep me occupied she said!!

    Just spoke to neighbours asking how I was managing and set me off crying again - I’m hopeless at the mo

    enjoy tonight folks I’m going to have some chocolate 

    love Helen x

  • Helen I'm sorry we are moaning on here when you are grieving and I know we have this ahead but trust me we do think about you and feel sad for your loss and you know you are going to have some bad days and lonely times but if it is even just a chat please know we are thinking of you xx

  • I agree with Jkee. Les gir up and took a bowl bacj to bed with. I am worried now as he has not been this poorly since starting chemo. In a way it is like being on your own when the take to bed. 

    torry we all think of you  and great you cooked and bake. May be bake for the neighbours. 

    Jkee keep up the puppy training. It should be worth it fingers crossed. 

    patty so pleased he is making good progress may it continue when he gets home and behaves himself. 

    off to lay down but doubt I will sleep.

    love and hugs to all Maggie xx

  • Morning everyone!

    Had not a wee bad night with the granddaughter. Kept me occupied. She slept right through the night though she is at that age now she burns up loads of energy so will sleep at night. Place is like a bombsite with toys books you name it all over the place but they're only this age once. Baby Shark and Peppa Pig are on a loop as well so that keeps her occupied. Jay phoned Wednesday still looking likely. They tried but failed he said to try and get blood from him last night think it took a couple of attempts he said before they gave up its very hard to find veins with him apparently. Think he said they'll try again later today. They changed his mattress for him last night they said to one of those ones that inflates with air then deflates. Onwards we go. Take Care All/

    Vicky xx

  • Hi Vicky. So pleased you had a good night with granddaughter.  They can be so funny and naughty at the same time. Unfortunately I thought Les would be better today but he has gone back to bed. I hope this is not the start even though he is on his 5th chemo. Getting worried now. I expect tiredness but this morning for half hour he was looking like an old man and shuffling. Might start to clean windows outside as bird poop all over them. 

    love and hugs to all xx Maggie 

  • Morning Vicky good to read a positive read hopefully this week better for you my sister's partner just confirmed bowel cancer but cannot do anything as he has a failing heart what a year soo much cancer about . Woke more positive with puppy Simon spoke last night he said stop worrying about the dog it's just a dog so more relaxed today and he slept until 6am .Must admit don't have time to think about the future with a puppy love to you all xx

  • Hi,

    Pups are hard work but in the end will make a great companion. We are considering as we lost our 18 year old last year. Not sure if it’s the right time at the moment but considering. Take care x

    Cath