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Bowel cancer carers, family and friends chat

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Hi all, thank you for accepting me. My husband has been diagnosed with stage 4 bowel cancer. At present I am not accepting it, it makes me feel sick, panicky, shaky etc. it was a complete shock.  Anybody else in the same situation.  Many thanks

  • Morning Maggie Simon went on a small walk with my daughter left my 2 beautiful grandchildren 2 boys age 11 and 5 bloody dog was biting the ankles kids were screaming and crying i was shouting i lost it to see my boys upset put dog outside and shut it away. When Simon returned just said no way do I want the dog my grandchldren will be too scared to come his reply he just wants to play think your high voices made him nip you. All calm again xx

  • Morning how was the night xx

  • Thanks girls!

    Yes I am exhausted. Mentally more and little bit tired. My neighbour downstairs from us kindly put the car back into the driveway last night as I had to move it out to let the ambulance come right up to the path. My neighbour parks his car in the front garden and the driveway is kind of open so it's like 2 driveways in the one and he has stone chips down on his side so as Jay had to get stretchered out yesterday - they didn't want to sit him up because of his low blood pressure incase he passed out- they wanted to be able to get him down and be able to walk on the concrete path incase they tripped on the chips and as I was going in the ambulance with Jay I got my sister who is back staying with me just now to give our neighbour the keys to put the car back in again. Just been out for a wee run in it to clear my head a bit. Didn't get up until after 10 this morning carers and everything else who come in have been cancelled for now so I didn't need to rush to get up for those or anything. Changing the bed covers again as they are a bit `wiffy` again with Jay lying in there and some blood stains as well. Now I know he did have an infection because when they asked last night if there was an `odour` I said yes I said you could smell it a mile away like a horrible dank musty smell and he said yes that was the infection you could smell it as soon as you walked into the room. It was like the smell of fresh blood and of course he has been having bother with that in his nether regions so obviously infection was still there. May have a little nap later on see how I feel. feel a little more positive that he is back in the hospital and at least I know he will be looked after. Take Care All.

    Vicky xx

  • Just up not from a `wee` but BIG nap. Went for a lie down just after 1 still felt really tired and woke up again at 3. Must have needed it. Spoke to Jay on the phone and he said surgeon has been round to see him and basically nothing else regarding that can be done and it's just a case of getting rid of the infection now. He asked why he keeps getting these infections and the surgeon said it can be a number of reasons why he keeps getting urinary infections and the most obvious is the cancer being there which will be attacking his immune system but he said there are other factors that can be added into that too and what they can't say just now. They have sent samples of the infection to the lab he said to try to work out where it is coming from. But Jay sounds a whole lot better a lot better than he was this time yesterday so hopefully it's onwards and upwards- again!

    xx

  • Brilliant he went on a small walk. The grandchildren’s other Naha has a puppy and they scream every time it goes near them.  It just wants to play.  They go once a week and the week before the eldest was so bad they came home after 20 minutes. It is only a miniature daschound. How we are going to get then not frightened is beyond me.  Glad it is all calm again xx

    pattyk hope all is well and as Jkee said get some rest.

    torry I hope you are having a better day today.

    soeak soon tea is nearly ready.  Love and hugs to all the troopers. Maggie xx

  • So pleased you got to rest and tomorrow you feel stronger to deal with everything hugs to you xx

  • Hi Maggie I know puppy's hard work shouted at Simon tonight about not wanted the dog now feel bad but new day tomorrow xx

  • Patty so pleased you got some rest. Now you know he is getting looked after (not that you didn’t) 24/7 it must be a relief that you can get some rest ready for his homecoming. Just keep positive and it sounds as though he is a bit stronger which you will be pleased about. 

    Jkee it is another day tomorrow.  Keep calm and carry on as they say but I do not envy you one bit. You can do this as you are strong. Instead of a puppy I have bloody plants all over as he keeps buying bulbs etc and gosh even my brother who came round said god this will take some doing as it is not a small garden. Apparently the weeds and nettles are about 4 feet high at the back. Half of the garage is in the drive and an old car that will be written off on the front drive. It certainly looks like Steptoe and sons now. Moan over.

    Take care and goodnight to all. 

    huge hugs Maggie xx

  • So pleased we went thoroughly enjoyed it although I could feel my self going a couple of times. Have rang for counselling today and someone is ringing me on Monday so will see how that goes. been out most of the day and spent a couple of hours in the garden tonight so shattered and hope I get a good sleep.

    hope everyone is doing ok

    Helen x

  • Really chuffed you enjoyed it. So proud of you for going. Life must go on especially for your family. I am not sure if I could cope on my own but you are doing a marvellous job torry. I woke up full of anxiety this morning.  I expect it is the unknown but who knows. One day at a time torry and you will get there. The lady next door suddenly was left on her own 3 years ago and even the mention of him starts to get really upset but she is still going out an on holiday etc.  I am pleased you are sorting counselling out. It may or may not help but you are not losing anything by trying. 

    speak later huge hugs love Maggie xx