Hi all, thank you for accepting me. My husband has been diagnosed with stage 4 bowel cancer. At present I am not accepting it, it makes me feel sick, panicky, shaky etc. it was a complete shock. Anybody else in the same situation. Many thanks
Helen, I'm glad you have been out and about and do hope you are feeling less achy after some rest, I hope you are managing some sleep too.As Maggie said, go easy on yourself x
Dear Amy. How are you doing. I expect the same as all of us. It is quite a nice day today. I am still quite anxious and shaky. He has a follow up with oncologist today. Love and hugs to all. Maggie. Xx
Maggie, sending best wishes for the oncologist visit today..its always nerve wracking..we are still waiting for the CT results from a few weeks back so really hoping they come soon too. It seems a never ending cycle., but in we go!
Good luck today sat outside on my own in sunshine while Simon tried for 1 minute but back layed down let's have a bit of good luck today sending hugs xxx
Dear all. It has s only a phone call. He has a ct scan on 11 may while on chemo tablets . I thought it would have been after his 4th session . That worries me. Just trying to get the miss off the motorhome as have not used it only once in two years. I am shattered. It is going to rack and ruin but won’t sell it. I can’t tackle the garden it is such a state and I can’t sit outside as everything is too heavy even his motorbike seized up and he won’t sell that either. I feel I am in a no win situation and that makes me anxious Moan over take care everyone love Maggie xx
Just had a wee breakdown. Palliative care nurse was on speakerphone talking about what we need to look at for Jay coming home. He's not quite ready yet and the physios still have stuff to do with him. The palliative care nurse said that she doesn't think that he will get his mobility back as it was. She said she thinks he won't manage getting up the stairs into the house. Excuse me! but she just sounds like `Morticia Adams` personified. Everything seems to be a negative with her and I know she is only doing her job and needs to be blunt and honest without sugar coating stuff but it just got so hard to take in and I just broke down while on the phone. I just kept apologising and saying how sorry I was and she was apologising for upsetting me but I know she will be used to this. They are looking at how he will managed mobile wise once he gets home and the physios will be trying to get that in place. He says when he sits in the armchair in his room the discomfort comes back but he needs to let the physios see he can do this. He says he can't but he won't even try because he had a bad experience with it already its as if he doesn't want to go there again.
She spoke about putting in a hospital bed, but we don't have the room for that, and he doesn't want a hospital bed he feels he's not quite at that stage yet. The physios need to work on stairs with him and he said he is determined to do that. The nurse said one option would be for him to come home and just stay in bed, but I don't want that and neither does he. She kept talking about the time he has been in bed and not active like he was in bed mostly 4 weeks prior to being admitted for this infection and has more or less been bedbound for another 3 weeks while in there. He has been up and walking for the physios but that was only once last week, and they never came back to do anything else with him.
I spoke about us moving house to a ground floor flat somewhere, but these things can take months to happen. We have our name in for alternative housing as I mentioned here before but, nothing has come out of it. And months is something he may not have we don't know really don't want to know. I'm going to the hospital this afternoon the physios are going in and I think they want to see how I can get him up out of bed etc. He says he has been sitting up in bed without this discomfort now he said one day earlier this week he sat up for about 6 hours he said without any pain. I just feel I could go to bed and just not wake up at all just now but I know in my head that won't happen and it's just the way I'm feeling at the moment.
Hi Vicky. Just a thought could your GP or the doctors write you an urgent letter for a ground floor flat or something more suitable. I am so sad for you as you will not know where to turn at the moment. My heart aches. Personally the physostigmine should have been to see him every day to get his strength back and I think it is awful that the have not done so. I would be in a terrible state in your position and I really feel for you. Sending you huge hugs and love. Maggie xx
Dear Vicky so sorry you are going through the mill. It’s so hard trying to take it all in and to try to be strong I couldn’t have managed if we weren’t in a ground floor flat and even then we couldn’t get Kevin out either the from or the back. They brought ramps but it was too late for Kevin. It is so much harder than you think when they come home so accept any help offered. I know it’s only words but I do understand what you are going through I am off to register Kevin’s death tomorrow and then we can get a date for cremation I am still crying at the drop of a hat Just had a fantastic delivery of flowers from my local gym. Over run now with them all
hope things improve for everyone and thinking about you all - take care
Hi Vicky sorry to read about your call with hospital is their anyone that can help you fight for a ground floor flat this is so wrong you deserve help to get him home you are amazing and doing all you can wish I could help you xx
