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Bowel cancer carers, family and friends chat

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Hi all, thank you for accepting me. My husband has been diagnosed with stage 4 bowel cancer. At present I am not accepting it, it makes me feel sick, panicky, shaky etc. it was a complete shock.  Anybody else in the same situation.  Many thanks

  • Dear Patty,

    Just caching up- I am so very sorry to read your news. I know no words can help but please know I am thinking of you and sending you as much love as I can.  You have both been through so very much and I hope Jay can be home with you and his loved ones very soon.

    Biggest of hugs

    Amy xx

  • Morning Jkee.

    Yes I wish we could all go back a year too a couple of years pre-pandemic before all this started. Jay phoned me this morning and said he wanted me up there as he thinks he's not got long. i phoned the ward desk and they said he was fine and his blood pressure is just a bit low but oxygen levels and everything else are fine and he is just that little bit weaker this morning. He is saying now that he wants to stay in hospital as he feels too weak to try to get into an ambulance. That is a sort of blessing, so I have to speak to William and make sure he is alright with that I need to give him his place. I have had the palliative nurse on and she said that there is danger there as well of maybe trying to transport him and it may happen that he passes away in the ambulance on the way home. If he comes home he will need a hospital bed Marie Curie have been consulted and they said in his present condition a standard bed would not be acceptable but if it is the case he changes his mind then I will just have to try and find a way of making room for a bed but the nurse said today we could just be talking days now when she saw him this morning. 

  • Gosh Patty. I would be up at the hospital straight away.  I can’t imagine how you are coping. This is the worst newest ever. You will have to see how he is before deciding whether or not to risk bringing him home. You will know more when you see him. I am just sat shaking my head in disbelief wondering how I would cope but I doubt I would. Sending you huge hugs and love Maggie xx

  • This is making me so sad to read please go up he needs you and you must need to be with him I would just want to hold him every second with him is important for you both  wish things were different for you but I can only send my love to you both xx

  • Morning Maggie it's makes me sad the friends we have made on here and the sadness this site can also bring we all have to face cancer sometimes positive sometimes not so but what ever we can all support each other today feels heavy love to everyone x

  • I also wish we could go back in time, life was so much easier back then before all this started. 

    PattyK, so sad to hear your latest news. I'm glad you have a supportive cousin to help you during this difficult time. Sending you love and hugs. My hospital's visiting time is 2pm to 7pm. I'm sure they will let you stay longer or go outside visiting hours under these circumstances. I hope you get to spend a lot of time together.

    Distraught, I hope your husband is a bit better now with his stomach problems from this morning. I'm the same with my dad, any indigestion/bloating/feeling sick, I go into panic mode. I'm glad you got some medication to take the edge off a bit. Take it easy, hopefully your gardening is all done. You should be proud of yourself for tackling the garden all by yourself! 

  • So sorry to hear your latest update Pattyk, sending strength and love to you, and your family. I have been reading through this thread and have found it truly inspirational. How you have all supported each other through all the tough times is truly remarkable. 

  • Falling leaves garden nowhere finished trying to able 20 foot hedges. Will do the tops tomorrow but I can tel, you they are not straight at all.  Just can’t stop thinking how Patty is and also torry. I just wished I insisted he went to the docs 2 years ago instead of worrying over mum and going up and down constantly.  Will be back on later.

    huge hugs to everyone xx

  • Hi Maggie. Barry is exactly the same, sometimes I feel I am going from my 2 year old granddaughter saying has she done a poo today to my husband saying the same thing. He has problems with being bloated and his appetite is really small now.  He also sleeps a lot in the chair. I am finding it difficult to motivate myself to make a meal for me when he only wants a tin of soup (I do make my own but he prefers tinned cream of ……. Soups). Take care. Pauline xxx

  • There are no words at this time that can help but hopefully you can get to the hospital and spend some time together. I too wish I could turn back time, this is such a difficult time for everyone caring for their loved ones through their cancer journey. 
    take care. Pauline xxx