Hi all, thank you for accepting me. My husband has been diagnosed with stage 4 bowel cancer. At present I am not accepting it, it makes me feel sick, panicky, shaky etc. it was a complete shock. Anybody else in the same situation. Many thanks
Still waiting on this ambulance and my anxiety is through the roof!! His blood pressure is really low and this is what is worrying the more time they take to come, the more it may go down. They had a job with him the last time trying to get it back up again and the longer they take to get here this time is might be worse. This ambulance was booked at just about 11 this morning through the GP and it is now after 3 so just about 4 hours I've waited. Oh and the GP saw fit to put it through as a `non emergency` but I've been back on to the 999 service and they have upgraded it I think to an emergency. Something about no vehicles being available in our area. If my oven wasn't electric I would be going to stick my head in it just now. Keep you all updated.
My goodness what a day we are all having once the ambulance is here a good cry and breathe the hospital i feel is best place you can't do this all yourself at least the nurses and doctors will give round the clock care to give you a break and that he is home with you soon hugs xxxxx
Hi Maggie think we are all on a bad day today I really can't deal with all this stuff pretend I can but I can't so hard looking after Simon and puppy my heart breaks for you all suffering today you are all in my thoughts xx
My goodness, so much is happening to you all. I'm so sorry you're having a bad day. It is very stressful indeed and difficult to handle. I wish I could say something comforting and make it all go away but unfortunately there all no magic words. Big hugs and love to you all, my thoughts are with you. I know it's so hard, I try to remind myself that I'm doing the best that I can and there are things outside my circle of control. Whatever you feel is normal. This really is a test of our emotional strength! Take care everyone, fingers cross things will be ok.
Hope the ambulance comes soon as it’s horrendous just waiting and worrying. Sometimes I think it’s a relief they are in hospital as it gives you a bit of a breather. I sincerely hope they can sort him out again but it’s a worrying time and the not knowing. Maybe they will scan or whatever and give you some answers. I unfortunately don’t think they have a magic wand. Keep in touch and update us when you get a minute.
Have been out most of the day and got pot for Kevin’s tree had lunch out and seen his mam and dad. His dad has just been diagnosed with vascular dementia this week.
I am off to the City Hall with Sally to see ELO tribute band tonight which was Kevin’s surprise birthday treat , I bought the tickets before he was diagnosed with bowel cancer and didn’t feel like goi g but have been persuaded to go.
Maggie I hope you day gets a little better and you are all coping as well as can be
Patty. You are doing a great job. I would just be in a state of panic. If they have not arrived within the hunt ring back and ring the nurse to come out if you are not coping. Heart felt hugs. Maggie xx
Well what a night! I am shattered. Got home at 3 again this morning. Jay had a blockage in one of his nephrostomies and they were able to flush it and they are working again. He has a very bad infection though and is very dehydrated again. The urology doctor came down to A & E to see him last night. They said they were deciding whether to put him into High Dependency again but said this time it may not be a benefit to him because the stage of the cancer now there is obviously things they do in High Dependency that don't get done in a regular ward. The head specialist from High Dependency came down and he more or less said the same high dependency won't do much for him this time. So he is being kept on IV fluids and antibiotics for now. They were talking about changing his nephrostomy wires but not going to do it for now because they want to get the infection down first. The doctor who saw him in A & E last night came in to see me in the waiting area and told me about the blockage and she said the put a new wire in on the blocked nephrostomy but they are saying they are just going to replace the two but once the infections clears a bit. His blood pressure is starting to rise again and his oxygen levels and heart rate are good again too. He has been put up to a regular ward now and I phoned this morning and the nurse looking after him said he was sitting up and having a coffee so he must be feeling better he had to get two units of blood into him last night too because of his blood pressure being so low and he had developed anemia again which explains why he looked really pale like a pale magnolia colour. So hopefully please god he is on the road up again and not ready to go just yet. Keep you all posted.
Vicky what a day and night you have had. I hope you feel a little better knowing that he is getting looked after. I bet you are mentally and physically exhausted. Try and get some rest. Just quickly checked in as I am in the car at the moment.
Bless you Vicky what a day and night it's amazing he is sitting up having coffee hopefully he will do as he is told for the nurses and team and you get him home sleep is what you need now xx
