Anxious following surgery

Hi Pixiebel. What are you confused about - the chemo or the liver? Because you had 4 lymph nodes affected then you’ll be given chemo to zap anything that might be still lurking about. I had an mri on my liver as it showed an abnormality afart the Ct scan but it turned out to be a haemangioma which is a harmless cyst which are very common and most people go through life being none the wiser unless they have a liver scan. Do you have a colorectal support nurse that you can ring to clarify?

Take care

Karen x

I was told after surgery that another CT scan would be carried out as last one was 3 months ago and they want to see if there are any changes… the chemo doctor yesterday was no use at all and made me feel anxious as he didn’t explain the types of chemo just gave us leaflets and said come back in 2 weeks we also had to push got another ct scan … my discharge paperwork reads stage 3 and although the most of the cancer is gone i want further scan to be certain as I still don’t feel at ease 

Hi again. I had a few hiccups post surgery so not sure what ‘the norm’ is but think I had a scan before starting chemo and then again at the end, I had oxaliplatin by iv then capecitabine in tablet form - this is known as Capox or xelox. There are other chemos where you wear a pump for 48 hours so if you find out which one you’re having then I’ll be able to tag in someone who’s had the same? Chemo can be tough but it’s doable and worth having to put the belt and braces on your treatment. I’ve attached a link to a thread that we started about it

 Chemo care ! Top Tips:-

I am also thinking of this option but I’ll read more info over the weekend … how long ago did you have chemo and are you ok now?

Hi Pixiebel. I had my chemo in 2017 and I’m still cancer free. The only lingering side effect is tingling and numbness in the soles of my feet - it’s called periphery neuropathy and I should have spoken up when I first got the symptoms but I didn’t!

Hi Pixiebel

I'm just a few months ahead of you on this rollercoaster. Click on my username to read more re diagnosis and invasions.

I was told some trusts have critical resource shortage in radiology. I've just had 1 scan (a pre diagnosis CT scan) and will be waiting a few more months for the next. Probably end up about a year apart. Not ideal but a sign of the times.

I'm currently on 5FU (also known as MdG) if you want to discuss my +/- experiences of it or anything in general, feel free to private message (via "Friend" functionality).

Do you have a specialist oncologist nurse? If you find your oncologist unhelpful, the specialist nurse maybe be good to chat to.

Hello thanks for connecting … I honestly

feel I have no support at all I am just given info and told to come back with a decision 

it’s all very daunting 

Hi Pixiebel,

It is massively overwhelming, it's a lot of information to deal with and all in a short space of time I would imagine!

I was diagnosed with colon cancer in September last year, surgery on 1st November, I had 3 lymph nodes out of 45 that showed signs of cancer so I am now on Folfox chemo every 2 weeks for 6 months, just had my 3rd dose on Friday. I contacted the McMillan nurses at the hospital a lot, I probably drove them mad with my questions.

I have found this group massively supportive, and lots of people going through or have gone through the same thing.

Take care,

Bex

Hi

It certainly is overwhelming and a lot to take in especially as it was in the middle of Christmas…

Colonoscopy back in September and 3 polyps found .. 2 removed and 1 had to be removed via op .. had CT and MRI which showed liver irregularities also.

I had my op on 14 December to remove 12 inches of sigmoid colon then results on 28 December to then be told it was cancer in the large polyp and 4 out of 16 areas affected also contained cancer.

I am now awaiting a date for chemo as I had an appointment on Friday which threw me in all directions with no support hence why I am now on here asking for advice xx