Two appointments this week. Finally told they have found actually cancer cells. Signed all the paper work. Then chemo appointment yesterday. Basically got a whole load of medications for all sorts of thing and a huge tube of moisturizer along with the chemo pills. It made me start to thing about the actual ins and outs of the 5 weeks of the chemoradiotherapy which start on Monday! I was expecting it but now it's real! Also so went to a well-being councillor and spent the hour crying and talking - I think I finally let go as I have keeping going as normal. Close family know and one or 2 key people at work. Thankfully I am on holiday for the first 2 and a bit weeks of the treatment so I can get used to it and see what effects it is having on me! Chemo did say that they now give out the medications for the most common side effects so you have them to hand if needed rather than having to get in touch and get them if needed - makes it easier for the patient and hospital! Just feeling overwhelmed - I hope that once I have the first treatment the next 24 will get easier even if the side effects might get worse. Just want it over with. I think the unknown is making me anxious!
I know in my head this is the first step before surgery and both treatments should get rid of it so I am more anxious about the side effects and surgery recovery than the cancer cells - I don't know if that sounds strange?
I feel as prepared as I can be - lots of my favourite quick and easy foods in the larder incase I loose my appetite and a few treats! A quite Christmas planned. Most presents and cards done and in the post! Thermometer by the bed!
Any other tips to get through this?
Thanks for reading
Geminipi . I think you suspected that they would find cancer cells but it hasn’t changed your treatment plan if I remember correctly. You sound to have been well looked after the hospital and sound to be very organised at home too. I left my pre-chemoradiotherapy appointment with a carrier bag of ‘goodies’ - loperamide, diarolyte, shower wash, moisturising cream, antisickness meds…….To be honest a lot of it was ‘just in case’ and I still have the diarolyte although I’m sure it will be out of date now!
I think my main tip would be to go with an open mind and, dare I say, a positive attitude. A lot of people hate the ‘p’ word but my nurse said it definately helped and if you spend all day worrying that you might get a side effect then you probably will because the stress and worry will upset your stomach. I’m no superwoman but I tried to carry on life as normal
We’re due a leap in temperature on Monday so have your treatment then go out for a walk or coffee and cake - please don’t put your life on hold waiting for side effects that you may never get. Hope it goes well and please keep posting
Take care
Karen x
Yes I was expecting it and they said we would start quicker if they found cancer cells. Because they were as sure as they could be despite the biopsy just being abnormal that it was a cancer everything was in place for a quick start. I think it is just more real now the start date is Monday. At this stage in the process and maybe for my own sanity I am just think about this very abnormal polyp that needs treating only the HR women and my partner knows that the third biopsy showed cancer. I am not telling many people as I do hope the carry on as normal. When I went to see the HR women with the proposed schedule for the 25 treatments she actually suggested I have another day off in the week ( usually work 4 morning and she suggested just 3) as the Wednesday appointments are in the morning followed by a review so it's hardly worth going back into work. I teach so it's quite hard when you are off but I have been discussing with my head of department what I can leave for the classes I would miss. Yes I think I just got a bit overwhelmed yesterday with all the additional information. I tend to put all this 'in a box'when I am out and about and at work so at least most of the time things seem normal. I am a bit of a worrier and a slight control freak so don't like the uncertainty but I am sure it will be fine once I have the treatment and I know what it is like.
Really hope your first course of treatment goes well and that once your have experienced your first visit, I hope it becomes less stressful, good luck and hope you post how your doing.
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