Ovarian cancer spread to bowel

Hi Brigid. Having the small and large intestine removed sounds like a lot of missing bowel so your food transit and stool storage will have been seriously impacted. Did your consultant advise about using loperamide? I’ve attached links to a booklet about regaining bowel control and also a link to a talk that a gastroenterologist did for the bowel cancer uk board? It might be worth seeing if you can be referred to someone like this?

https://bowelcancerorguk.s3.amazonaws.com/Publications/RegainingBowelControl_BowelCancerUK.pdf

https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/general/232375/regaining-bowel-control

Thank you so much. I will read through the links. Yes, oncologist suggested trying immodium. She said it's a case of trial and error. A neighbour is going to get some for me today.

I'm trying to stay positive, particularly as current outcome is much better than I expected.  Hard sometimes... thanks again, much appreciated.

Regards

Hi again. Just read, listened to both links. I particularly found the gastro consultant, Dr Andreyev, video very useful and encouraging. I liked his sincerity and his message of keep asking for help, don't "put up with it". Very powerful message. Thank you 

Apparently there was a new msg from seaspirit. I can't see it.

Hi Brigid

Seaspirit reacted to your original post with a “hug”. You would have received a notification of this so perhaps that’s what it is rather than an actual message?

Sarah xx

Thanks for your message, Sarah. I've only been in this group since this morning and already it has been very helpful. TBH one of the main lessons I've learned is not to take any specialist at their word and to question everything, no matter how much it "annoys" people. I am not a cynic, but if I hadn't questioned some stuff, my "story" might have been very different. On the contrary, the cancer team (most of them) have been caring beyond belief and the surgeon I eventually had is an angel, with the biggest heart.

Hi Brigid

Im

I’m glad you’re finding it helpful-this group is full of amazing people with sound advice and experiences to share. To be honest I agree with your questioning of things-we have to be sure we can be confident going ahead with anything proposed, and the reasons for decision making. I too was lucky enough to have a surgeon who was absolutely wonderful. 

Sarah xx