Not Great News!

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So, went for Jay's oncology appointment this morning. Was up to high doe!  Unfortunately, the CT scan has shown that his cancer has progressed and is sitting in his pelvis and the oncologist said that there is a slight showing in one of his lungs so it's more or less spread and there is a very slight decrease in his kidney function. His weight has dropped to 127Kg down from 133 the last time. He said the reason that his mobility is probably reduced is because the cancer is probably putting pressure on to his pelvis. His chemotherapy has been stopped for now because the oncologist doesn't think he is fit enough for the next session. He examined his legs and said there is a bit of fluid retention there as his legs had swollen slightly but he said there is still a lot of strength in them. So, he has given him away water tablets to try to get rid of this fluid he takes these for a week and then he wants to see him again in 2 week's time.  I am absolutely beside myself. Sometimes you go to these things expecting the worse and they turn out for the better. Not for us unfortunately in this case. 

Vicky

  • Oh dear  words just seem so inadequate at this time .

    Sending you both loads of love . 
    My mum has just had to have diuretics to sort out fluid in her legs and it did it quite quickly too . A couple of weeks later and now we just need a Gp appointment to reduce them and get her catheter out .

    Hope it’s the same for your husband .

    They do seem to want to see him again in a few weeks to review the situation . Hopefully they will be able to give some more information then if they plan to try a different chemotherapy .

    Remember our helpline staff are there to chat to . 0808 808 0000.

    Please reach out to them and let them support you .

    Take special care ,

    Court 

    Helpline Number 0808 808 0000

  • . Hi Vicky. My heart goes out to you and sending you a big hug - I know you were hoping for more positive news. Looks like there’s more waiting now while the water tablets do their work and hopefully J will get a bit more strength back. I know he’s been struggling mentally with it recently and hope he can find the strength to continue with the next stage.

    More difficult times ahead but you know we’re always here for you and please ring the helpdesk like Court suggests?

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Thank you so much Karen. 

    Just in shock still. As you could imagine hardly slept a wink last night. Tossing and turning and constantly up and down. Jay seems unusually calm and jovial don't know whether this is just `a front` though. He ate a bowl of cereal again this morning for breakfast and fried himself a sausage and had that on a plate with loads of brown sauce can't help thinking though he's just doing this for the sake of it though and more or less saying f**ck it!! Got up in the early hours this morning and caught him just sitting staring at blank TV screen says he was feeling warm and that's how he was sitting there it was quite warm through the night but very windy. Just have to take it as it comes. 

    Vicky x

  • I have telephoned the helpline. I phoned them yesterday and spoke to a lovely lady on there. I was in absolute bits and just broke down over the phone and what she said I am feeling is natural and that I have had a shock and just trying to get my head round it. I just poured my heart out to her and she was so nice. I'm more concerned that he's not going to be here to see our little granddaughter grow up now and I know now that every time I see her with him its going to rip my heart out because he thinks the world of her and she's only 2 years old. We want to wait until we go back and see the oncologist in 2 weeks before we make this official that the cancer has spread and I respect that and he said once we know what's to happen in regard to hopefully some new treatment. I can see Christmas far enough now horrible time for this to happen horrible time for it to happen at any time though. What a difference a year makes this time last year we were preparing for his surgery to get the tumour cut out which went well then six months almost a year were back with a fight on our hands again. 

    Vicky x

  • Sending hugs  and to  and her mum xx

    Onwards and flatwards (don't do hills) and keep walking if you can!