Hi Everyone!
Well, after yesterday we I thought Jay had turned a corner and was starting to get a bit better, but it feels like two steps forward and three back. He's gone to bed and told me that he feels really weak. He said he feels tired but not a `sleepy tired` just physically tired in other words f**kd. I keep asking him if he's ok and he says he is, but I don't know if he is and he gets really bad tempered with me because I keep asking him. He says if he felt really ill he would tell me so but i don't know if he would and so I just need to take his word for it that he is ok.He is on Xeloda (Capecitabine) and Oxipalatin as you probably all know from the number of times I come on here. I am really beginning to worry now because I know it's his choice, but he says he doesn't know if he could go through anymore cycles of this. I really don't want him to stop and would prefer he at least try another way in maybe they will alter his dosage and reduce it somewhat but then again will that stop the effectiveness of the chemotherapy. He was really doing so well in his first 3 cycles, and it is so hard to see him like this as he was doing so well. His arms are beginning to look really scrawny again and he has lots of loose skin around the tops of his arms (think `bingo wings` but a lot looser) he's just not my Jay just now and I just don't know what to do. I took his temperature again and it's still normal. He has started as I said eating again and he finished this course of tablets this morning. He's gone back to eating fruit again and has been eating oranges and drinking orange juice. He's just not his happy go lucky self just now and his voice is really low and it's as if he is straining to speak and he says his mouth is really dry I got him some alcohol-free mouth wash but don't know if he's using it. I'm sorry to come back on here again with this but my mind is going into overdrive again I've even told new people on here not to think they are being a burden and who am I to say that? when I'm coming on here feeling like they do. Can anyone tell me the week the person is not on treatment does the chemotherapy still keep on working? I know that may sound daft to some of you but as I said my mind is going into overdrive again and I just need some reassurance. Thanks.
Vicky x
Bless you it’s so hard.
Can you do something good this weekend. A break away from thinking about it. Could just be a movie night at home with a few treats that would take both of your minds off the stress of it all.
There were things that I really enjoyed and bless my hubby he watched the romcoms! It’s definitely not his thing but he said he liked it I think he enjoyed me liking it
Ann
