Can anything else go wrong

  • 6 replies
  • 127 subscribers
  • 619 views

I had my op on the 13th, home on 15th, back in on the 19th, as l had ileum, home 25th, back for check up today, and after being given iv fluid was examined, and now it seems fecal matter is leaking out of my vagina, so I have to go in tomorrow for emergency op to try to rectify the problem, I may need a temporary or permanent stoma, which doesn't bother me in the least, I don't know what else I can take, it's every week, I feel so tired and listless, I just want some decent sleep,  it's been getting better after I joined a trial, long may it continue. Has anyone else had the same problem, and how it was fixed? Needless to say I am a bit deflated, we left for the hospital at 9.45am got home at 7.30pm. Long day

  • Oh 

    No wonder you are struggling with all that . You have been through so much already .

    I am so sorry you have more to face . I will be thinking of you tomorrow and hope you are well supported as you face this final hurdle to get you back to full wellness .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thanks court, I don't mind admitting I had major wobble today, but she did let me come home for the night, which is always a bonus.

  • No place like home x 

    Helpline Number 0808 808 0000

  • Hi MissTee

    Im so sorry that you have this. It’s horrendous. I had an issue in the early stages post LAR with my Ileostomy and I didn’t realise at the time. I was loosing a brown discharge from my vagina. Later on I had an EUA which determined that I didn’t have a rectovaginal fistula. Now there’s hope as I overheard my surgeon talking to another patient that her fistula was sealed  I think I heard him say glue, but don’t quote me!

    Try not to worry. Lots can be done the most important thing is to get you sorted 

    You may not need a permanent stoma but like you say life’s fine with it. In actual fact me having both my life was free and no issues with whoopi

    It may be a case of giving your body a breather for a while and a stoma would do that. Then later you may have a reversal if you want 

    I really hope that you get a treatment plan quickly and you can enjoy some days without this constant worry. You’ve had a rotten time.  I am sending you a hug and hoping that your team get their act together quickly 

    A stoma op isn’t too invasive so hopefully you’ll be out and about quickly 

    Keep us posted xx

    Ann
     ‍Art

  • Good luck with your operation today I’ll be thinking of you xx

    Ann
     ‍Art

  • Hope the op went well, , and you can get a good nights sleep.