Good news 1year on

This sounds wonderful . I am

so pleased you have sun great plans .

Court 

Hey, how's Jay doing? Had my op on 13th, no pain, home 15th, then bowel went to sleep, rushed in on Wednesday,  still in, on antibiotics, gastric tube drain in, on iv nutrition,  thought I was doing well, had fire alarm going off for 3 hours this am, that's stopped, and my drips started, at some point I will get some sleep. Take care, hope all well, any tips for getting g bowel to wake up greatly appreciated. Rosie xxx 

Gosh sounds rough MissTee

. I only realise now what people mean about the noisy hospitals . I stayed a few nights with my parents . You will be so pleased to get sorted and home .

Take special care ,

Court 

Hi Rosie!

Yes, he's good. He started his 4th chemo cycle yesterday (Friday) but we're a bit in limo just now as to if this will be his last one. When he has been going for his sessions at hospital, they give him his meds away with him and they had been giving him a blood form and a clear bag to take away too for when he has bloods done on his `down week` at the GP practice but this time they weren't giving him one to take away and I asked about it. He gets his CT scan this coming Thursday and the wee nurse said that after 3 or 4 cycles they do a CT scan and then assess whether more chemo is needed. He hasn't actually been told how many cycles he has to go through, but we assumed it would be 6 because 6-8 is usually the norm but I think it depends on each individual patient what they need. The routine has been on his down week he goes and gets bloods done then the next day he sees the oncologist and they day after that he starts his infusion session. He sees his stoma nurse as well this coming Wednesday so it will be all go again this week coming. We saw the head oncologist last week and he seems quite pleased with the way he is progressing, and he seems, well we assume again that his treatment is going well. He says his liver and kidney function is normal and his bloods are good as well. He still has to take his tablets for this fortnight though. He did have a bit of embarrassment yesterday though. His stoma bag burst while he was in the chair getting his infusion, so it was a quick exit to the loo I have been allowed to stay with him during his infusion sessions because of that usual companions are asked to wait out in the waiting area, but Jay asked if I could stay in the infusion room in case that happened, and he needed help and they agreed to it. He couldn't help but apologise to the nurses and they told him not to be silly and it's something that happens from time to time and what they're there for. He unfortunately didn't bring a change of bottoms with him, and he had his shorts on because the room he is in can get really warm, so we just had to clean him up best as possible until we got home. I've checked in with his oncologist's secretary and she will check if he needs to get blood taken this time and get back to us. The oncologist doesn't work Fridays. When we got home, he had a letter waiting for him from his surgeon. This was to say that she was sorry she missed us at the clinic yesterday which confused us because the last time we saw her was on the 9th of September 10 days before Jay started his first infusion. In the letter it said his kidney and liver function was normal as was his blood levels, but the CEA marker had elevated but everything else was ok and that she was pleased he was starting chemotherapy. The letter was dated the 17th of October which was last Monday, and this really confused us. So, phone her secretary and she said not to worry, and it had been a `complimentary letter` and she was just apologising for not seeing Jay in person because that day her clinic had been so busy and he got seen by one of her registrars. So. so far, so good Rosie just the scan that's worrying us coming up this Thursday, but we hope and pray that will be ok too. That would be the cherry on top of the cake if that came back with good results. The oncologist said he will try and get the results back for us at his next oncology appointment because seemingly there is a backlog with scan reports. Take Care Rosie. You sound a lot more positive. Tips to get your stoma moving. If you can eat a lot of fruit and stuff with fibre and fruit juices well that's what the stoma nurse told Jay. He panicked one time his bag hadn't moved for 2 or 3 days and he phoned his stoma nurse and this is what she told him to do and ironically later that day it started blowing again like `billyo`. Take Care. 

Vicky xx

Sounds good I hope for the best for Jay, and for your too. I don't have a stoma, op was straight forward,  but the problem is, that a week after the op,my bowels gone to sleep,, so I'm lying around trying to wake it up.  I'm so tired too. Take care,  Rosie xx

ThanksCourr, any tips on how to wake your bowels up? Op went well, but after a week, back in, as well, bowels asleep, I'm moving, have IV nutrition, gastric tube, I've chewed gum, I don't know what else to try, any ideas would be appreciated. Rosie x

hi Rosie. 
so pleased that operations over for you as you’ve had a journey to get there 

What are you eating? 
That may give some great responses 

Take care x

Hi Artsie,  I'm eating nothing g, they won't let me, I was eating soup, mashed spuds, veg, usual foods wasn't told I couldn't eat anything,  but got to rhevpoint where I threw up and ended up in here again. I'm hoping that things are now moving as I did go to the loo earlier, though it's watery and bloody, it's moving again, but other tips grateful.

Rosie xx Hooe your reversal is going OK xx

Hi Rosie 

It’s great that things are moving as going to the loo is an improvement, throwing up is not.  I’m not a medic but I presume that the blood was there after their operation. 

The watery thing is I think normal. I didn’t realise but that’s what our systems make so if there is no stodgy food there it just keeps doing that. 
I would ask the knowledgeable there what’s the best for you 

I ate what I was told which was mainly beige but we are individual and it’s what’s best for you. 
I hope that you manage to settle your bowel it seems that they can be very  sensitive. But if you’re going to the toilet then I’m hoping you will be on the mend

Thanks for asking about my reversal,

it’s been pretty much the same as when I first had my stoma.
However I keep pushing the boundaries that I know my bowel tolerates. It’s a real pain. 
It’s going well as long as I stick to a limited diet I eat food that I know will give me a consistency in my output. So it’s the same as when I had whoopi. White, bread, dairy, chicken,mash. Kind of toddler food. Nothing to make my bowel overreact!

Keep trucking! As my sister would say. You will get there. 
I’ll be thinking of you 

Rosie ,When you have ileus they stop all food and drink  until things start to move relying on an IV drip.once your bowels wake up they will start to let you have sips of liquid then the usual custard,ice cream,mash,gravy sort of thing. Gradually increasing items as it improves.

Hang in there as it does improve and you can get rid of that horrible NG tube(the worst thing I found)

Kath