Tiredness after a Chemo Cycle

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Hi Everyone!

My husband Jay has just completed his 2nd cycle of chemotherapy (Oxaliplatin and Capecitabine). He said to me today that he was feeling tired but didn't feel tired if that makes sense. He says he just feels `bluegh` is the best way to describe it and just feels like he has no energy to do anything. He is a bit grumpy too and I just wonder if coming off these tablets for 7 days can just be as bad as going on them. He seems to be fine when he's on the Capecitabine I know that might sound daft, but I would have guessed this would all have happened while taking the Capecitabine he's also became a little bit withdrawn again but I know that will pass in a couple of days and he said that it's getting to him in his head now about the cancer although the hospital have been telling him he's doing well. I try to encourage him to try to do things he used to but it's not working. He cooks dinner etc but that's about all I try to get him to get outside as much as possible, but he won't do that either. We come to the caravan and there are plenty opportunities for him to go out for walks, but he won't budge he won't go out unless it's to go out in the car. Don't get me wrong he will do things roundabout the outside of the caravan i.e. wash it down- he likes to keep the bodywork on it clean and have it looking good- and he takes the opportunity to wash the car but for some reason he just won't go for a walk or walk the dog which he used to do. I know psychologically this will be getting to him and I have suggested him speaking to someone and it has been offered here, for him to contact someone at MacMillan but he refuses and I can't make him if he doesn't want to do it. He says he feels `yeuch` after the cycle of chemo for a day or so then he's fine. I just don't know what to do and I just can't force him to do anything. Just wondered if anyone else who has had or is on Capecitabine if they feel really bad during their `down week`.  Thanks

Vicky x

  • . I think he sounds to be doing pretty well and he’s talking about how he’s feeling to you which is good. Chemo can make you feel very up and down. If I remember correctly I used to have a short steroid drip as part of my iv which might explain the ups and downs. I also found the first couple of days after the iv were the worst as I had arm pain and just felt very ‘can’t be bothered’ which is why I enjoyed going in to work because I had to make the effort.The week off is a nice respite and you can start to feel a bit more normal again but then I used to have a bit of a slump before my next chemo as it felt a bit ‘here we go again’ and it seems a long time until the next week off. Go walk the dog and ask if he wants to come with you but don’t push him if he doesn’t. He might just need a bit of ‘me’ time? 
    I can imagine it’s a bit of a tightrope for you - you’re obviously concerned and worried and know a walk would be good for him but don’t want to nag him into one. I think just go with the flow for now and play each day by ear depending on how he feels? From a patient point of view I don’t think we always realise how much our partner is struggling and trying to interpret how we’re feeling and what’s best to do for us? 
    I think you sound to be a great support and I’m glad you keep posting with how you’re feeling

    Take care and hugs

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Thank You Karen!

    Yes, he has mentioned that the back of his hand can get sore after he's had the Oxi infusion but after a day or so he's fine after that. He's a lot better today says he feels a lot better than he did yesterday but as I said I notice this now and it seems to come in a pattern that he will have a few `down days` and then he's back to his old self. It's as if he wants to do things but just can't make the effort to do them and I sometimes find myself- and I know I shouldn't- resenting him sometimes for not doing anything. But as you say maybe not a good idea to force him into doing something and just go with the flow. It has caused a few `flare ups` between us because sometimes get the impression he just can't be bothered but then he came out with it yesterday how he feels and that sometimes he can express how he's feeling to me but if he did, I think I would understand more. His next cycle begins this coming Friday (30th September) last time he said he felt really tired after the Oxi shot and he had `an explosion` with his stoma bag which wasn't very nice, but we managed to get it sorted and had a good laugh about it later. Yes its good I can come on here and ask just about anything about our- although it's Jay's cancer journey, I look on it as `ours` as we're going through it together- and there is always someone here who can help. Thanks again. 

    Vicky x