I'm back in limbo, after being given a date for my tumor to be removed robotically, now after having to wait since the mdt meeting last Friday, I was summoned to Wythenshawe to see the surgeon who now wants new mri and ct scans,she wants to do an examination under general anesthesia take a "road map" of the tumour and the nodes, then hopefully the beginning of October I will have the op. I'm stunned, since the 11th of June I've been in limbo, I thought I had a clear path when she said she'd do the op on the 1st, now its up in the air. I broke down, it was the first time I'd cried in front of Steve, and he's so stressed as it is, I couldn't help myself, she keeps saying it's in my interests, to get new scans, to wait, and all I want is for it to be gone, my scans are 2 months old, it's not like they're from 6 months ago. I don't know what to think anymore, my brains given up thinking.
Sorry, MissTee, to hear this, it is not helpful to your nerves!! But I think I can see why new scans might be needed, as they need to get it right. It does sound like she is thorough but that's obviously takes more time. I guess the old scans would be 5months by the operation so that might give them false info. Sending soothing ((hugs))
Hi MissTee
I agree with Gemmary. Your MDT need all the info to make their decision on your best treatment what a blow for you to process
This must be so hard to cope with.
I’m sorry that this has happened.
Keep chatting here if it helps.
In my own experience I felt the same my colonoscopy was May. I saw it and was told it was enormous! I had CT and MRI Then I had an extra Endoscopy ultra sound and I was extremely stressed. When I phoned I was under the impression that this would remove it. No it was ultra sound and measurements. The Doctor phoned me and explained that they needed to know exactly where and what procedure was needed. You may be similar.
When I had my consult the surgeon examined me again to make his final decision for my op.
So I am hopeful that there’s a question mark on robotic or keyhole and incision.
I really hope that you hear soon
You could phone your team, I found their support amazing
sending you a hug
Ann
Thanks you Artsie, I feel a little shell shocked, I was so ready to go to have this tumor out, but as its so low, its a pain, literally and figuratively, I get they need more scans, and I know this is her 2nd week back from holiday,but she's on call next couple of weeks, amd doesn't want to do the surgery and leave me with no back up if she's busy elsewhere, then she's off again for at least a week, then clinic, I have the scans tomorrow, which is quick, I know she's a week of clinic appts, so it'll be after that, I thought it may have been to talk about the chemo, but they thought there was just 1 node involved, but the radiologist there thinks there's a whole bunch of them that will have to come out, then chemo to mop up any that have been left behind. I also think that she could have done it over the phone, as it is I've been today, got to go tomorrow, then for the explority stuff on Thursday, it not a long drive, 40 to 50 mins, but its on roads where you just can't relax, and Steve's so wound up, he's not sleeping well, he has some health issues raising up,but won't go to the Dr as he says it's more important to get me fixed, but I worry about him too, my sis is a big help, love her to bits, she thinks it needs to come out asap. I'm a bit low, but I realise that she needs to see the whole picture, I was literally saying on the way there that I was just going to go straight back to my local consultant, tell him to get it out, I didn't care if it was the big op, or if I needed a stoma, i just want it out. I feel drained, I'm not sleeping well, I'm exhausted and everything is an effort, I'm sure I'll be ok when it's sank in, I guess another 4 or 5 weeks won't hurt, and I don't have to have the picalax, that's a good thing, to empty my bowel, it's just an enema when I get there and I'm 1st on her morning list. It'll be fine, just being back in limbo is not a good place to be, next time I'll pop a post on when I'm actually going down to theatre, so I know it's not being cancelled. I do appreciate everybody who's lifted me up and given a hug I know you're having your surgery soon, I hope it goes well for you. Rosie xx
Oh Rosie, I’m sorry you’re back to a wait. When I met with my colorectal surgeon he used exactly these words “road map” when saying he wanted another mri before my surgery. I’d already had scans and didn’t see why more were needed, but he needed to know exactly where everything was situated to do the best job for me.
I waited from October to March all told, between scans and different procedures and found the waiting very hard, but appreciate now that they needed exact and precise up to date info to do the surgery. October sounds a long time away, but it’s really not, although it must be very difficult to bear after the wait you’ve already had.
Sarah xx
Aww MissTee!! So sorry to hear that. Last time you were on here you sounded so positive that it was all finally going to happen. But as Artsie and Gemmary are saying they may want to be sure they get everything right but that doesn't make it any easier for you I suppose. Sending you a big virtual hug and hope you get off that island soon. Take Care.
Vicky xx
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